Blog Entries With Tag: thyroid


Posted: Apr 28, 2014

This blog post is dedicated to Susan Townsend who died of a stroke on April 10th.  She’d become a diabetic in the 1980’s, and she struggled with it, she admits that she thought she was the “ world’s worst diabetic. Diabetes eventually lead her to become blind in 2001 and almost 10 years later she suffered kidney failure and her eldest son Sean donated his kidney after she’d waited a few years for a donor (now is that a son or what?).   I thoroughly enjoyed reading her books over the years – if you’ve never heard of / or read ‘The Secret Diary of Adrian Mole Aged 13 ¾ “– I am saying “shame on you “ – go to your library, bookshop, get thyself a copy – and keep on reading all of her fantastic books.

Picture of Sue Townsend courtesy of Brunchnews

~~~~~~~~~~~~~~~~~~~~~~~

Wednesday, February 19th

I’ve sort of been out of the loop lately – especially with diabetes discussions on the Internet – and composing my entertaining blogs.  My life lately has been overwhelmed by dealing with thyroid issues – or at least that’s what I think it is – with my lab work for endocrinology showing the signs. My endo I see for my diabetes (the one that was against my going onto a pump, etc.) – has been telling me for years that “eventually you’ll be on meds” – that’s despite my asking him if he agreed with the American Association of Clinical Endocrinologists (AACE) new guidelines for TSH normal range and recommended to change it from 0.5-5.0 to 0.3-3.0 (this was back in 2002!).  He rolled his eyes – end of discussion.  At that time - I was over the 3.0 range - and feeling like crappola (lose weight - eat less - exercise was his basic advise).

Today – after my lab work from the previous week for my GP – where I had ticked off extra tests for my thyroid panel rather than just the TSH which really doesn't reveal all the dirty details.  I pay 20% out of pocket for these tests to be done in a lab rather than government run clinic - wher they don't allow the patient to have a copy of their results - ssshhh - if only I lived in France).  My feelings are, it's my body - I want to know how to make things better along with my health team.  This time - thank goodness - my GP obliged me with giving me a prescription for Synthroid– the lowest dose possible – it’s a start - to hopefully regaining a normal life again.

Dare I mention that it’s helpful to have your DH with you on a doctor’s visit – because I think otherwise she might have dismissed my pleas for help (I was getting desperate - to the point of jumping out of a tall building and going splat).

Photograph by Ahn Junn

Wednesday, March 5th

I’m really behind on keeping up my journal.   actually have to admit – that I now understand how an adult – being diagnosed with diabetes feels.  It’s very daunting – when you don’t know what the heck you are dealing with.  For myself – by doing research – trying to learn all the terms that are associated with my thyroid are just the same as diabetes.  It’s mind boggling!!!  Personally, I’m finding having diabetes – even with the roller coaster ride I’m going on currently with my blood sugars (#BGnow) going wacko (oh – did I mention I’m peri-menopausal right now – I’m a constant bleeding and emotional pig – which I’m trying to cope with so I don’t worry my DH).  Diabetes is the easy part of my life at the moment compared to what I’m dealing with having had it since I was a child – it’s like riding a bike.  Thyroid disorder – is like learning how to surf (whack goes the board into my head – do people wear helmets when they’re learning I wonder.

Monday, March 17th

Heart burn city!!!  Never experienced this before.  I don’t know how people put up with this when it’s caused by eating.  Mine I think is caused by the Synthroid.  So far, no success with having GP  return my call for advise - just her RN - saying she'd follow up.  Nothing.  Mint flavoured calcium packed Tums - delicious - semi affective on the pain.  I’ll keep on popping the Synthroid pill – which I’ve discovered – tastes slightly sweet (reminds me of baby aspirins – that some kids used to pop like candy – bad, bad, bad).

Tuesday, April 1st

April Fool's Day

Urrrhhhh!!!  Of all days - April Fool's -  I’ve had enough of this – doubling my dose – did I tell you some of the symptoms I’ve been having over the years???  Sit back – have a drink – gonna tell you a story about a man call Jed

Weight gain!!!!  I’m afraid to pull out the scale – at my GP’s visit – I’d gained 10 pounds (4.5 kg) over a few months. I have rolls of fat on my back now – never had that before) Muu Muu dresses are my fav thing to wear – except difficult in winter months when you have to go out!  And with my difficulty with staying warm (I’m frozen all the time – so unlike me – I even wear a hat inside the house – brrrhh – it’s Spring time!!!).  Therefore, I’m actually not going out much anymore – no energy – I want to sleep like I’m Sleeping Beauty.  To be happy about waking up in the AM – would be oh such a wonderful thing to appreciate again.  It’s been close to 3 years since all of this started (and the happy pills did nothing (you can see my talking about it in this vlog I did a few years ago) – they are a common thing given to undiagnosed thyroid patients – sad to say)

Maxine - I'm Out Of Bed cartoon

Friday, April 25th

New labs – TSH level is down – but other levels have changed – along with my antibodies (TPO) now being even higher.  I’d tried posting my results in a few groups I belong to online – but no replies (they mostly are more concerned with a natural thyroid medication aka Canadian Bacon/CB that I’ve been told to go on – but again – one step at a time with my health team).  It is made from desiccated pig thyroid that has a balance of T3/T4 – unlike the T4 Synthroid.  The only problem I’m finding – it varies on how it works depending on the manufacturer – and sometimes isn’t covered by health insurance plans  I think due to my being on the synthetic one – that they think I’m a whack job (just like pumpers think of folks who do MDI – aka multiple dose injections).   Also, I do know that the Canadian units in our lab work differ from USA – but so far – like with blood sugar conversion rate – I’m not having much luck (or time) to locate anything.  So for now, I’m happy with what I have found in a great article written by Dr. Marina Gutner at Outsmart Disease.

Monday, April 28th

What I’m learning from all the research I’ve been doing with pro-CB folks – and folks on combinations of T3 / T4 meds – like diabetes – YMMV (your mileage may vary).  None of us are the same on medications – like Levemir insulin (insert blog).  I did try it again after my GP told me that Lantus causes weight gain.  I have an allergic reaction to Levemir – it pools up in a hard  lump – despite the small dose).

I think having patience to find the right combination of meds / diet / exercise – like any health problem – takes time.  I am trying to be optimistic here – as I meet up with my GP tomorrow – and hope she understands all my babble - if not - it's onto my endo the following week.

Hmmm, maybe I should give her this blog?  So, she’ll understand what I’m going through.  That’s a plan … that’s a plan.

Picture of peacock courtesy of MyCrappyHouse.com

 

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Posted: May 3, 2013

So, if you read my Twitter / Facebook feed you’ll know that for some reason –  for about 5 days earlier in the week – I thought I was perhaps CURED after almost 50 years with Type 1 diabetes (T1D).  I wasn’t the only one having the same thing happening – other T1D mates of mine were having the same lows like I was – tho’ for me – I wasn’t rebounding up (e.g. blood sugar spiking high) – but I was having the opposite – of going lower or not moving at all from a range of 3.5 – 4.5 mmol/l (63 – 81 mg/dl).  Sometimes I would go lower, and this was just on my basal insulin – which currently is Lantus while I’m taking a siesta from George Michael my Animas 2020 pump since the beginning of the year.


Of course, things have gone back to normal, but still, times like this, where we feel like we are detectives, trying to figure out what is the cause of the crime is sometimes so frustrating that at that point – diabetes takes over your life – as you try to accomplish what you want to do – but blood sugars (BG) are not cooperating.  Even worse for me, with the onset of menopause and thyroid acting up, I’ve been told to shed weight.  This is so hard to do, trying to lose weight, when you are having to stuff your face with sugary things to keep your BG in balance.   Of course, after having a low blood sugar (hypo) it makes some of us exhausted, sleep head folks.  I’m very lucky that of course, these 5 days of being low, were during my days off from work, when I have so much to do at this time of the year with Spring clean up, getting ready for the sailing/motorcycle season.  If you heard a lot of screaming coming from up north in Canada – that was moi – frustrated as all hell, as I laid on my comfy couch in the spare room, cat in my crotch purring with contentment of a human pillow.  I feel so unproductive at times like this – when I have so many plans – and poof – with a low BG’s that last more than just 1 day but goes on for many- … this is when I hate being a diabetic!!!   This is when FatCatAnna is not a happy cat like she appears to all she meets and greets!  On top of dealing with hormonal changes, I’m surprised during those 5 days I wasn’t ready to be locked up with the ups/downs of mood swings .

Now that the warmer weather is occurring (Spring is very short here in Montreal, boom, suddenly we are having summer like temps) – more of my neighbours that I chat to during the year are coming out of their homes.  One of my neighbours is a Type 2 diabetic (T2D) – and her sister who lives close by is always coming to me to ask for advise on her.  She says her sister eats too much bad food, doesn’t test her blood sugars enough, yadda, yadda, yadda.  I always ask her, is she seeing her doctor, is she getting ill frequently, is she happy?  Of course, the answer is, yes, she’s doing fine.  So, I try to tell the sister that if she’s okay – then not to worry too much - but that she is a good sister for caring.  Now, if she was losing weight/gaining weight drastically, getting ill, then there would be concern to worry I told her.


My neighbours sister asked me how I was doing.  Of course, I told her about having low blood sugars and saying I’d been CURED (I was joking of course).  She looked at me and wondered how could I have diabetes – since I look so healthy.  Nice compliment I told her, but sadly my T1D doesn’t just go away like that – I’m on insulin for the rest of my life.  She then cried out when I told her that I’d had T1D for almost 50 years.  

I explained to her the difference between
T1D & T2D.  T1D is an autoimmune disease - - and your body makes little or no insulin at all and then T2D is usually age related or being overweight along with insulin you produce not being used efficiently She then went onto tell me that 2 of her other sisters also have diabetes and just on pills.  I’m not sure if what I told her will be retained in her memory banks – but like many T1D’s – we always have to explain “our” type of diabetes against the more common T2D.  If I really wanted to confuse her, I could have gone on about the other forms of diabetes – but that’s another day of my advocating about diabetes. 

On with staying balanced in my little world of cat nip and sunshine!

 

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