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Blog Entries With Tag: pump
Posted: Jan 24, 2015
I've always been abit of a fashionista ... I live in Montreal ... that doesn't help ... as fashion abounds here. Despite working from a home office, and just lounging around in comfy clothing, sometimes I like to go out and become a wild cat ... and slick my fur to look elegant and demure ;)
Since going onto the pump in 2008, I've had to change the type of clothing I wear due to accessing the pump to bolus and do other functions. I had tried a thigh holder, but sadly the lady no longer makes them, and didn't give me much advise on where to get the products she used to make them. I attempted to make a few, from similar materials, but failed. Testing them out meant the pump was dropping as far as the tubing it would allow it to go as the spandex leg band I'd made slid further, further down.
Diabetes Depot, a Canadian company (and run by a few staff with diabetes - including the pharmacist Tino Montopoli) deals with products for diabetics. He sells the American product called GirlyGoGarter. I did some research on it last year, but the website/Tino didn't have much info about measurements for the thigh area. Because it's considered lingerie, you cannot return it, so if I had ordered up the incorrect size, I would have been stuck with something I couldn't use.
They show women with just about everything but the kitchen sink in this velcro held lacy/strechy band around the upper thigh that is backed with a rubber type of material (similar to what you would find with stay up stockings). They are running, dancing, walking and with what many of them have stuffed into it, it's not going down. So, I was sold and decided to order one this week despite the no return policy (it's lingerie so can't be returned like many stores do).
For myself, I am doing some test runs with it, and as you see in the picture below, with my insulin pump Ziggy and his side kick Dexcom receiver ... there is more room for other medical devices like the FreeStyle Lite meter that I may place in one of the many pockets on the lace band. You can place items within the lace bit like I've done OR for security, there is a inner spandex band that will hold things more secure. I gave it a good test, running up/down stairs, chasing the cats around the house, sitting down, getting up ... no slippage unlike the other leg pump holders I've had over the years.
I don't usually promote devices that are commercially made, but for diabetic gals who like to wear a dress from time to time ... I'm giving this a thumbs up.
The nice thing is, even if I go to MDI (multiple dose injections) like I do from time to time when I take a pump break ... this will still come in handy to keep my needles, etc. if I don't wish lug an over the shoulder boulder holder and at same times have my hands free!
Check out the website for more info ... and if you live in Canada ... you can buy it directly from Diabetes Depot for $39.95. The measurements are pretty accurate and the suggestion of going to a smaller size worked out for me. My thigh measurement was just at the beginning of the largest size possible in their product line. If I had not done this, it would be too large.
Hope this helps any of you facing similar situations of where to keep medical devices, other objects that will leave you looking less bulking with devices around your waist line, etc.
Back to dreaming of being in warm climate ... with bare legs (oh - this only works on bare legs ... but according to GirlyGoGarter ... they are working on a new product that will be for those women who wear it over tights, etc.)
NB: I had written a blog a few years ago with a link for instructions to make one ... I have yet to give that a go ... but if you can't afford to buy one ... have the time ... check out this link to learn how. One day, I'll manage to find the time, but I just happened to luck in on having some cash to splash for a treat to myself.
Related posts:Instructions for Making a Thigh Insulin Pump Holder | Edmonton man denied insulin for 20 hours | She’s got legs and she knows how to use them (the semi-Fashionista and her pump)! | Shame on Johnson & Johnson / Animas | REMOVAL – clinical trial for T1D's in UK, Australia, Canada, Denmark and Netherlands | Riding thru' the mountains of the Adirondacks | My Porky Pig fingers are tired | Smooth sailing with CATSCA / TSA | Is insulin a youth preserver? | Official response from Animas with 2020 s/w issue
Posted: Dec 24, 2014
As I suspected, the basal settings that I’ve got overnight on my insulin pump Ziggy are a wee bit too much. A month ago, Animas Canada sent a CDE over to see me (also a pump wearer) – to go over my settings in my pump program as I was having issues with high blood sugars with menopause.
Psst - if you want to see a full size of above to see descriptions - go to this link - sorry Diabetes1.org doesn't allow me to load up larger pics
I actually didn’t get going on the pump until about 3 weeks after seeing her, when I decided to get off MDI (I go back / forth between pumping and MDI). After 2 weeks of battling lows at night, tweaking basal settings, I lucked in on getting the DEXCOM G4 (see my day before blog on this).
As I went to bed last night, I started seeing the trend going down and put the pump into temporary basal setting. A few hours later, alarms started, (freaking out the cat under the sheets – she likes to cuddle up to me at night) – DH … slept right thru’ like a baby (which is usual <lol>). At that point, because I’m a smart kitty kat, I “lowered” my basal setting abit more.
Little did I know, in my hypo state, I was actually INCREASING!!!
So, here I was dipping in the upper 2ish mmol/l (40 mg/dl) range and thinking – “wow – this is the greatest things since sliced bread” and “no wonder I’ve been tired so much lately, I’ve been sleeping through all of these lows that are alarming”.
Come 0600, with alarming / vibrations almost every ½ hour … I decided in my infinite wisdom to lower the temporary basal setting …. and when I looked at the history of the basal’s … BING … I’d increased instead of lowered.
Scary stuff – lesson learnt – that sometimes the Hypo Fairy makes me a dumb diabetic – who doesn’t think before they press buttons.
Overall though, I think this will be a useful tool for me. If only this tool was available to every diabetic that wants it or even better, if your diabetic clinic/endo could loan you one at a lower cost than what a personal one costs. I would splash out the cash, with the hopes that insurance might cover part of it.
Sadly, when asking the endo at the Lakeshore hospital that I went to for pre-op earlier iin November – if this was available … no (and neither is Diasend for them to see how you are doing). The same applies to my other two doctors I see for health concerns.
On the bright side of all this, the Animas CDE has told me of a new young doctor, in my neck of the woods of Montreal that is seeking insulin pump clients. She said I’d be a good patient to help him learn the ropes, while he’s training with Animas Canada. I sort of like that idea, and the fact I’ll finally have a doctor that will get what I’m saying when I talk about my insulin pump.
Things are looking good for the New Year for … Ziggy … Stardust … and _______________ fill in blank for name of Dexcom D4 (if you can think of a neat name – let me know).
So, now I’m going to slink away from the desktop, get cracking on my visitors arriving today (ehgads the house is a mess), and I’ll see you all in the New Year (have promised myself and visitors I will not work during the holidays … easier said than done, but I’ll try my best).
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Tags: blood (2) hypo (1) trend (1) BG (1) sugar (1) pump (1) T1D (1) diabetes (1) insulin (1) CGMS (1) Dexcom (1) Animas (1)
Related posts:Are you really hypo unaware? | Edmonton man denied insulin for 20 hours | The Brain Battle | Mama - Why Was I Chosen? | She’s got legs and she knows how to use them (the semi-Fashionista and her pump)! | It's the Most Wonderful Time of the Year ... NOT! | Here's an interesting study | Revina Garcia: Diabetic Handcuffed, Dumped On Pavement By Police | Shame on Johnson & Johnson / Animas | REMOVAL – clinical trial for T1D's in UK, Australia, Canada, Denmark and Netherlands
Posted: Dec 23, 2014
... my new Animas One Touch PING (I think of the game ping pong with that name) insulin pump that I started on yesterday aka Ziggy and his side kick Stardust - the OneTouch meter remote (no more lifting my skirts up to reveal my knickers to the world when I want to do a bolus).
It will take abit of getting used to how much blood Stardust uses compared to Limoncello - my FreeStyle Lite (who will remain as my standby for days I can't squeeze out large droplets of vampire blood.
I had wanted to change to the Vibe, which has the CGMS option on it's screen which is an extra $200 (the PING is $6,995). I paid for it on my credit card that is allowing an extra 1 year warranty on it on top of the 4 year warranty you get with the pump (having had previous probs with the 2020 - I wanted to ensure I had 1 extra year more). I'm one smart cookie aren't I? Well, you won't think so after reading the following.
Laws here in Canada do NOT allow you to change your mind once you've purchased a pump ... even if the box isn't opened - live and learn - or move to US of A - where you have better consumer protection - from some of the thread discussion I've read on forums.
So, tonight - it's installing a Dexcom G4 sensor - the transmitter and receiver was given to me by islet cell transplant - who now insulin free (whoo! whoo!) from Alberta. I may continue to use it out of pocket once the Christmas present of box of sensors that my Animas rep gave to me (ususallly a box of 4 will set you back $340 for a month supply - cha ching) - runs out.
One thing I am finding out about the Dexcom ... after reading/watching the videos on their site. They keep on telling you that ... the CGMS does not replace your blood meter ... that whatever your CGMS tell you - that you should go with what your finger prick #BGNow number is. This is one thing I did not realise when looking into the CGMS. I knew a blood test had to be done a few times a day - but not some of what I came across at this link. Therefore, you still have to purchase perhaps as many blood test strips as you had before, in order to stay in a good BG zone.
So, between testing still with the finger sticks as some of us call them - and then to justify the the $7K yearly cost is abit scary (like buying a used car every year as my DH put it to me - men are so practical when it comes to justifying a purchase). Thank goodness for DTC here in Canada as well, but we have yet to see how much we can claim since I was approved a few years ago ... it's sitting down ... pulling out past income taxes, etc. etc. aka - we'd rather be sailing - than crunching numbers. Though my DH says he'll keep on working as long as he has to for affording these items - but the rotten thing is ... he's able to retire next year after 35 years.
Can you tell that I feel so guilty that my DH has to work longer due to my diabetes at times? That shows you how much someone loves you when they give up their retirement plans for you (his are sailing around the world - but you never know - maybe we'll be able to do it).
So, here's to the next adventure with devices from Animas ....
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Tags: Dexcom G4 (1) insurance (1) pump (1) insulin (1) sugar (1) meter (1) blood (1) Canada (1) Disability Tax Credit (1) DTC (1) Freestyle (1) Abbott (1) One Touch (1) Ping (1) CGMS (1) Animas (1)
Related posts:Are you really hypo unaware? | Edmonton man denied insulin for 20 hours | The Brain Battle | She’s got legs and she knows how to use them (the semi-Fashionista and her pump)! | It's the Most Wonderful Time of the Year ... NOT! | Revina Garcia: Diabetic Handcuffed, Dumped On Pavement By Police | Shame on Johnson & Johnson / Animas | REMOVAL – clinical trial for T1D's in UK, Australia, Canada, Denmark and Netherlands | Riding thru' the mountains of the Adirondacks | My Porky Pig fingers are tired
Posted: Nov 25, 2014
I’d written earlier about going for pre-op for surgery (which has now been cancelled and moved up to January for some reason – so more time for me to dwell on … do I go for it / or not?). At the time the pre-op team didn’t realize I was a Type 1 diabetic for some reason, and red flags went up when I questioned them what to do with my insulin pump regime. Especially for my after care with 3 day hospital stay for recovery. The pre-op doctor had said that they had 2 endocrinologists that understood how to work with patients with pumps. That excited me to no end, as I’ve never had an endo/GP with that knowledge. I’m self taught in most aspects of how I control my diabetes health, by keeping up with latest technology, discussing it with my medical team, and they allow me to self guinea pig myself with what I want to try. I am my own boss behind what I do with my health care for diabetes – but sometimes it can get exhausting – but I refuse to give into burnout from diabetes.
Fast forward, I arrived at the clinic in the Lakeshore Hospital. The diabetic clinic was a small place, with patients waiting (during the time I was there - one guy was glugging water like he was a fish out of water – sprinting to the loo to pee like a horse – sadly the door does not have good sound barrier …. uhhhmmm – diabetic out of control with their ???). I asked the receptionist, out of curiosity sake, if patients were able to share their pump/blood glucose information via Internet to their office (I use Diasend with my Animas pump). I think she was almost embarrassed and a few of the staff members behind her as well, when she said “No”. Oh, Oh, …. I’m thinking to myself … am I wasting my time coming to this clinic? I looked around at various info on walls and in the hand out sections … everything … geared for Type 2 diabetics. Hot flash started due to panic mode at that point. I am ready to run out of the hospital!!
Hour and half later, sweating like a pig due to being dressed for cold weather (and that day we were experiencing unusual high temps of 18C in Montreal – ovey) – I see the endo. She gets down to asking me my history. My saying how long I’d had Type 1 diabetes seemed to floor her and at that point I wish I’d said … I’ve only had diabetes for 15 years, which she had thought I’d said when I’d told her I was coming close to year 50 of diagnosis (I joked about applying for the Joslin award – I was nervous at this point – white coat syndrome as usual).
Then we got to my insulin regime. I told her I was currently on MDI (multiple dose injections) – but planning to go onto pump again on December 1st since I thought I had figured out the right dosage for my basal portion of my insulin regime with Levemir. She seemed puzzled by my not taking the same amount for each meal (I explained it depended on the blood sugar (BG) reading at the time, my I:C ratio, ISF ). I asked her if she understood what TDD meant? A term used in the pumping world for Total Daily Dose … she did – but she didn’t seem that interested.
At this point, I knew I was not seeing an endo with full knowledge of pump experience (as she spoke to me – I slowly undid George Michael’s battery cap, and slunk him iaway for future use). She admitted that not many people use insulin pumps, and that even the largest diabetic centre in Montreal isn’t as well. For my upcoming surgery, she does NOT want me on my insulin pump but to stay on the regime I'm on at present. She wants me on my current regime but RN's will be under my orders … if I am with it … otherwise they will follow the protocol the endo has written out - which scares me .... on the order form she has put down that I take 4 units of NovoRapid for each meal – which I told her could send me into hypo land if a) I had a low blood sugar; or b) I didn’t eat all the food on the tray). Gulp.
This is obviously not the United States of America – where I’ve heard from other insulin pump users going into surgery, sometimes wearing a pump. There are no CDE’s able to help you manage your health … not at least in Quebec where doctors are Gods. No pharmacist or CDE can help assist you in your health regime – so you suffer while you await to see a specialist.
Wait though, there is some good out of this visit. She wants to see me in February, and she is actually going to be testing me for celiac disease, which is common among Type 1 diabetics. I had asked previous doctors for this test, and they’d look at me like I was off my block.
The other thing that was interesting about this so called “pre-op” visit. My feet were examined by her doing a few tests which she says should be done every year for diabetics by a doctor. I have NEVER EVER had my feet examined by a doctor. She was amazed at the sensitivity of my feet, ability to still feel (I joked about not wearing socks with sandals, only as a child with my parents did I have to do that – memories of being made fun of by American kids at a beach in Maine one year will never be erased from my sponge brain). IIf I’d known she was going to do this, I would have washed them. Luckily, she said my feet were in amazing shape …. again the emphasis was due to how long I’d been diabetic. It’s like … what … am I supposed to have dinosaur looking feet or ????
Yes, I’m scared. I want to cancel the surgery even more so now. Time to write a letter to my surgeon. I must stop procrastinating!
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Tags: surgery (1) hospital (1) endocronologist (1) CDE (1) pump (1) insulin (1) Diasend (1)
Related posts:Edmonton man denied insulin for 20 hours | She’s got legs and she knows how to use them (the semi-Fashionista and her pump)! | My 13 year old self describing her DKA in the 70's | Shame on Johnson & Johnson / Animas | REMOVAL – clinical trial for T1D's in UK, Australia, Canada, Denmark and Netherlands | Riding thru' the mountains of the Adirondacks | My Porky Pig fingers are tired | Smooth sailing with CATSCA / TSA | Is insulin a youth preserver? | Official response from Animas with 2020 s/w issue
Posted: Sep 28, 2014
I found a new way to carry my insulin pump!
I have a few Spibelts (I posted in the forums here about a special edition larger pocket one). I never got that one - but am due to get another one - if I continue to wear my pump this way .... around my chest under my bra line!
I find wearing my pump this way - it doesn't have the problem of the pocket rolling around - causing the zipper to go into my skin - annoying - but I think it's due to my increasing girth ... darn peri-menopuase (a new blog coming up on that delightful woman only thing shortly).
If what I'm writing about doesn't make sense - then here's some pictures you can take a look at.
Opps - slam on brakes here - technical error - sadly I'm unable to post the my personal pictures here at Diabetes1.org at the present time - instead - just hop on over to this link to see the two pictures that hopefully describe how I'm wearing GM (they are PG-13).
Have you ever worn your Spibelt this way for your pump?
Related posts:Edmonton man denied insulin for 20 hours | She’s got legs and she knows how to use them (the semi-Fashionista and her pump)! | Shame on Johnson & Johnson / Animas | REMOVAL – clinical trial for T1D's in UK, Australia, Canada, Denmark and Netherlands | Riding thru' the mountains of the Adirondacks | My Porky Pig fingers are tired | Smooth sailing with CATSCA / TSA | Is insulin a youth preserver? | Official response from Animas with 2020 s/w issue | A birthday treat gone evil ...