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Blog Entries With Tag: hospital
Blog: Anna's Blog
Posted: Nov 25, 2014
I’d written earlier about going for pre-op for surgery (which has now been cancelled and moved up to January for some reason – so more time for me to dwell on … do I go for it / or not?). At the time the pre-op team didn’t realize I was a Type 1 diabetic for some reason, and red flags went up when I questioned them what to do with my insulin pump regime. Especially for my after care with 3 day hospital stay for recovery. The pre-op doctor had said that they had 2 endocrinologists that understood how to work with patients with pumps. That excited me to no end, as I’ve never had an endo/GP with that knowledge. I’m self taught in most aspects of how I control my diabetes health, by keeping up with latest technology, discussing it with my medical team, and they allow me to self guinea pig myself with what I want to try. I am my own boss behind what I do with my health care for diabetes – but sometimes it can get exhausting – but I refuse to give into burnout from diabetes.
Fast forward, I arrived at the clinic in the Lakeshore Hospital. The diabetic clinic was a small place, with patients waiting (during the time I was there - one guy was glugging water like he was a fish out of water – sprinting to the loo to pee like a horse – sadly the door does not have good sound barrier …. uhhhmmm – diabetic out of control with their ???). I asked the receptionist, out of curiosity sake, if patients were able to share their pump/blood glucose information via Internet to their office (I use Diasend with my Animas pump). I think she was almost embarrassed and a few of the staff members behind her as well, when she said “No”. Oh, Oh, …. I’m thinking to myself … am I wasting my time coming to this clinic? I looked around at various info on walls and in the hand out sections … everything … geared for Type 2 diabetics. Hot flash started due to panic mode at that point. I am ready to run out of the hospital!!
Hour and half later, sweating like a pig due to being dressed for cold weather (and that day we were experiencing unusual high temps of 18C in Montreal – ovey) – I see the endo. She gets down to asking me my history. My saying how long I’d had Type 1 diabetes seemed to floor her and at that point I wish I’d said … I’ve only had diabetes for 15 years, which she had thought I’d said when I’d told her I was coming close to year 50 of diagnosis (I joked about applying for the Joslin award – I was nervous at this point – white coat syndrome as usual).
Then we got to my insulin regime. I told her I was currently on MDI (multiple dose injections) – but planning to go onto pump again on December 1st since I thought I had figured out the right dosage for my basal portion of my insulin regime with Levemir. She seemed puzzled by my not taking the same amount for each meal (I explained it depended on the blood sugar (BG) reading at the time, my I:C ratio, ISF ). I asked her if she understood what TDD meant? A term used in the pumping world for Total Daily Dose … she did – but she didn’t seem that interested.
At this point, I knew I was not seeing an endo with full knowledge of pump experience (as she spoke to me – I slowly undid George Michael’s battery cap, and slunk him iaway for future use). She admitted that not many people use insulin pumps, and that even the largest diabetic centre in Montreal isn’t as well. For my upcoming surgery, she does NOT want me on my insulin pump but to stay on the regime I'm on at present. She wants me on my current regime but RN's will be under my orders … if I am with it … otherwise they will follow the protocol the endo has written out - which scares me .... on the order form she has put down that I take 4 units of NovoRapid for each meal – which I told her could send me into hypo land if a) I had a low blood sugar; or b) I didn’t eat all the food on the tray). Gulp.
This is obviously not the United States of America – where I’ve heard from other insulin pump users going into surgery, sometimes wearing a pump. There are no CDE’s able to help you manage your health … not at least in Quebec where doctors are Gods. No pharmacist or CDE can help assist you in your health regime – so you suffer while you await to see a specialist.
Wait though, there is some good out of this visit. She wants to see me in February, and she is actually going to be testing me for celiac disease, which is common among Type 1 diabetics. I had asked previous doctors for this test, and they’d look at me like I was off my block.
The other thing that was interesting about this so called “pre-op” visit. My feet were examined by her doing a few tests which she says should be done every year for diabetics by a doctor. I have NEVER EVER had my feet examined by a doctor. She was amazed at the sensitivity of my feet, ability to still feel (I joked about not wearing socks with sandals, only as a child with my parents did I have to do that – memories of being made fun of by American kids at a beach in Maine one year will never be erased from my sponge brain). IIf I’d known she was going to do this, I would have washed them. Luckily, she said my feet were in amazing shape …. again the emphasis was due to how long I’d been diabetic. It’s like … what … am I supposed to have dinosaur looking feet or ????
Yes, I’m scared. I want to cancel the surgery even more so now. Time to write a letter to my surgeon. I must stop procrastinating!
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Tags: surgery (1) hospital (1) endocronologist (1) CDE (1) pump (1) insulin (1) Diasend (1)
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Blog: Anna's Blog
Posted: Jul 5, 2014
Craig Idlebrook who is the editor at Insulin Nation has been asking on their Facebook page for stories from children/parents about their diabetic camping experiences. I gave Craig a brief description of my Camp Banting experience (and I actually had blogged abit here at Diabetes1.org a few years ago).
Though boy oh boy could I tell him a lot more – e.g. sleeping with my first “boyfriend” on a sandy mosquito infested beach at the young age of 10. Oppsie – my parents will now know I was being a naughty girl then. He’s also asked for pictures but cameras weren’t cheap in those days like they are today. I said I’d look Monday when I was off work for the pictures just incase but of course, what did I do?!?
I opened up Pandora’s box (aka my memory box) on my afternoon break (I work from home). I have yet to come across any camp pictures (cameras like today weren’t readily available – and not cheap for destructive kids like me to own). I did though come across disintegrating scrap books, pictures of friends that I could use as blackmail … KIDDING … sort of. I haven’t gone thru’ this stuff in 30+ years. Memory floods are hitting me – but luckily – not many revolve around diabetes – but I did come across something in my careful rummaging around.
I came across a letter I that might interest a few of those parents – worried about their kids and DKA. I survived it luckily without any ill effects (sometimes brain loss can occur). I was 13 years old when I wrote this back in the 1974, and had been diabetic for 7 years already.
What you will find below is EXACTLY how I wrote it out … in pencil (fast fading – and reason for my typing this out here) … obviously the word “unconscious” was something I didn’t know how to spell
I’m in the hospital because I had a very bad coma. I came to the hospital at about 3:00. During Monday I had been very sick and vomiting. I had a plastic tube stuck up my left hand for about three days. Luckily, when I came to Emergency I was uncon while they were putting the wires into me. It really hurts getting them into you because last night a nurse had to put it in my hand, but right this time. She jabbed me with a 3 or 4 inch plastic needle but it did’nt work. After two other attempts she put it in the same spot as in the other hand. But it did’nt stay in that long. My left hand is all swollen. It am staying here til I don’t know when. But I thought I was leaving on Friday, but I think I may stay Saturday and Sunday because the dietician made my diet up for those days. The food is out of this world. My hair was in a mess this morning but a nurse helped get them out for me. The doctor said I just came in time. He said I’ve been having a coma, (really) for about 3 months
Yesterday was DIASTER day, “this was a rehearsal” a woman said on the intercom. Their were lots of ambulances and it was interesting. It’s all because of the bridge they were building near Vincent Massey Park, a lot of workmen were killed or injured for the rest of there lives’. So if something happens like this again all the people in the Maternity ward go over to the Nurses’ Apartments, and the injured go to Maternity. I’m going home today, that’s what Needle Nurse says. I can’t wait. I’m going to miss Mrs. Lachance a lot though. I really like her a lot.
Note from Anna of today – The doctor who took care of me? I feel in love with him – sadly my regular endo at the time … WAS NOT AMUSED by my going DKA. Mrs. Lachance was the lady next to me in my hospital room. Back in those days – we T1D youngsters were put into the ward for what I am now called … an Old Fart.
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Posted: Apr 24, 2008
My best friend found out yesterday that she had diabetes...She called me and said she needed to talk. Poor Sasha, she was always afraid of diabetes. Her father has had diabetes disease since he was 45. Sasha believed he could still escape it by leading healthy style of living. Instead, he was spending all his time at work trying to maintain two of his business offices, smoke 2 packs of cigarettes per day and was drinking heavily during the weekend while going to a sauna with his buddies. By age 44, Sasha's father,Mike, gained more than 40% of his original weight and started having heart problems. The situation got worse, when the specialists found out that Mike had had diabetes for a while and he needed to go to the hospital. Sasha's father not only refused to go to the hospital but also continued working and smoking lots.... to be continued...
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