Blog Entries With Tag: endocrinologist


Posted: Jul 7, 2013
Image of high 5 cat from reallyfunnypictures.co.uk

I had attempted an overnight basal test on Friday - but that was a failure with going low (3.2/57) - but last night - with having tweaked basal rates abit was SUCCESSFUL!!  I went to bed at 6.2/112 and woke up to 5.4/97.  During the night around 5 AM I had gone to 4.2/75 - but according to Gary Scheiner's book 'Think Like a Pancreas' - he says staying within a 1.7/30 up/down range from your original starting BG (blood sugar) - I was in the good zone. 


I have to admit - I'd like to be abit higher overnight with my BG - more in the 6-7/108-126- - so will tweak basals eventually - but am so looking forward to having a solid sleep tonight - as last few nights have been very broken with getting up every hour.

I guess this would be where a Continuous Glucose Monitoring System (CGMS) would come in handy - I know of some US health centers loaning them out to patients - but when I asked my endo about whether this was possible here in Montreal - he said no.  Anyway, the good "old fashioned" way of testing with the blood meter went well.

So much more precise than the urine testing in my earlier days of diabets control as I'm sure many of you will agree on!

Curious - how often do you test your basal rates (pumper or MDI)?  I have to admit - I blog about it "how to do it" - but have never really done a full night one before until having had difficulties the past month with low BG's since starting back on the pump after my break from George Michael.

I know that due to not having a Certified Diabetic Educator (CDE) or endocrinologist (endo)  to show/tell me how to do these sort of tests - I've pretty well had to go with what I read in books that others have recommended within the DOC (diabeties online community).  I have to admit - this time I was using Gary Scheiner's book I mentioned above instead of the John Walsh book - 'Pumping Insulin'.  I actually found Gary's book abit easier to understand - he writes more from the heart with being a Type 1 diabetic (T1D) like myself - and a pumper as well.  Both books though are very good - so they have many dog earred pages!

Picture courtesy of Fiction Writers Review
                                                 Picture courtesy of Fiction Writers Review

There's a few more tests I'm going to be doing over the next few months - to get more use out of my pumps programming (e.g. I have a feeling due to my sensitivity to my insulin - that perhaps my carb ratio is set too low - there are tests in both books that talk you thru' how to perform this).  The pump as some people think doesn't mean you'll have better control of your diabetes if you DON'T use it properly.  The same applies to multiple dosage injections (MDI).  You are the brains behind these devices we use - they can only help - if you know how to use them - along with help from your health care team (provided they are up on all the latest and greatest).

I know some of you may think it's dangerous for me to be doing this on my own - but sadly - not all of us have the resources / services available to us - and this is the only route we can go.  I would LOVE to be able to have a CDE or endo that understood the fine tuning of the pump - but alas - I've not lucked in as of yet.  A few years ago my GP had referred me to an endo here in Montreal that does research in the diabetes field and works with pump patients.  Sadly, when I saw her (Dr. Natasha Garfield) - she told me that my A1C of 5.9% at the time was dangerouosly low if she was to take me on as a patient.  I had hoped due to her having a team of CDE's trained in the pump area - that I'd be able to go to them for help when I needed it.  So, I walked away with my tail inbetween my legs and carried on the way I always do.

The Cat that Walked by Himself - by Rudyard Kipling
The Cat That Walked By Himself - by Rudyard Kipling - picture courtesy of  -http://www.mainlesson.com

So, this is why I do my own thing - and again - some of you maybe in the same boat as I am.  So far though, I seem to be on the right track - despite the little roller coaster ride from time to time that we all have with this disease!
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Posted: Oct 4, 2010

B/W photo of mouth biting bullet


I've been back on the pump for 3 weeks now - and starting to experience the same problems as I did when I decided to go off the pump back in April for my "MDI experiment".  Having issues with F-d up BG's in the morning (high) - and it's almost like I'm injecting water into my body with the BG readings I've been getting.

Pumping Insulin by John WalshI've pulled out my trusty Pumping Insulin book by John Walsh - and of course - right there it says "Always seek the advise and guidance of your physician and health care team.  No book can ever help you as much as they will".  Easy phrase to type out, but to find an endo with pump experience or CDE is like looking for a needle in a haystack here in the part of Canada that I live in (let alone find one that I can converse with in English). I've blogged about this a few times and I'm beginning to sound like a broken record, but it's starting to get somewhat annoying when all my American friends in D-OC beat their chests about their CDE's , etc.  It makes me feel like a real whinner when I continually Tweet about the lack of finding someone!

So, I'm going to try to understand this book as much as I can (technical books aren't as interesting as the romance books I read ) and I've put in a plea for help to Animas Canada to see if they can find someone I can talk to and understand how to use this expensive piece of technology better.  I have to admit, I did find my BG's better on MDI, but I found it a chore to constantly remember to jab and this is what I like about the insulin pump, if only I didn't have this roller coaster ride with my BG's!  I just would like to learn how to use my insulin pump as best as I can!

Back to reading / highlighting and patiently waiting to hear from someone who can help me  (I would sell my soul to be able to have an endo that completely understands pumping)!


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Posted: Jun 25, 2010

Photo credit: bekkahrae at Photobucket

Have you started menopause yet?  Curious because I started about a year ago, aka peri-menopause as they call it these days.  I never had the regular PMS issues that many of my friends had during the years of "regular" menses.  I always had interesting periods mind you but not PMS, WARNING the next sentence gets abit more descriptive - but if you dissected worms / rabbits in biology class - you'll be okay.  I tend to have periods that are just blood clots due to polyps that I have (which are examined every year - if they become size of grapefruits - then they get nipped in the bud aka surgery ).

Starting on this new "life" which seems to have really hit me full force lately with headaches, bloating (I'm too old to be pregnant right?), fun times on the Porcelain Goddess from the derriere point of view (sorry - but have to be honest here) - I am ready to hit the looney bin.  Instead of just a few days to a week of this, I'm now going into my 3rd week!!!!  I'm so exhausted and of course with the hormones making the emotions wacky, I'm having to bite the bullet sometimes when I'm about to lose it (Mike my hubby wears a great shield of armour lately - bless him). 

Yes, I've now become one of those women that I used to think were making the PMS bit all up (well except I did have a boss that when she had PMS - you knew it for sure - scary stuff - stay clear - be careful what you say).  Of course, on top of this, my basal settings, bolus settings are now totally screwed up.  What was working for me prior - throw it out the door - and just inject more - wait a few days to see how it works - inject more.  I've now tripled my amount of basal (Levemir) twice a day injections.  Yes, still having the issues with lumps forming at the injection site, and now with the larger dosage, they are no longer little tropical islands but the size of Russia (no offense, but figured Russia is the biggest country I can think of that came to mind in my strange mind I have these days).

I cannot WAIT to see my GP who I had tried to see back in March and she was only available to see in July.  I think she may regret having me as her patient as I babble on about what's been happening.  Of course, I see my endocrinologist and gynecologist within a few days of each other.  It's see the doctor month for me - oh joy!!


Next life, I come back as a man - they get manopause later in life though - right?


Photo credit: jazzy1453 at Photobucket
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Posted: Jun 2, 2010

I have been diabetic for a few years now.  I think sometimes, how I took care of my myself sometimes was maybe a shot in the dark  – and often look at myself in the mirror thinking … “Wow – you aren’t doing so badly” with the technology that took care of my diabetes from the 60’s and up.   Things are much better now but only if you can find someone who can take the time to go over all the nitty gritty details of how to keep your blood sugars in control, either with pills and/or insulin.  At the same time, we also have to educate ourselves on how to take care of ourselves, but not everyone can do that. I’m telling you it’s a complicated roller coaster ride we diabetics lead sometimes.

 My experiment with going back onto MDI (multiple dosage injecting) has had its ups and downs the past few months if you've been reading my dribbles here.   I’m enjoying the freedom of not being hooked up to a machine, but at the same time, I miss the ease of how I can remedy a situation with a few touches of buttons on my pump and I’m all set.  With MDI, I’m personally finding it a big challenge, to maintain those even BG’s that I can get with my pump basal settings.  I had to give up on the Levemir part of my “experiment” due to reaction to the insulin.  I am now having issues with low blood sugars in the morning.  Trying to figure out what I’m doing wrong – e.g. am I giving my 2 shots of Lantus at the wrong time, am I ???  This is making me seek help from my endocrinologist for the past few days as I deal with waking up to BG’s in the 2-3 mmol/l – 36 – 54 mmol/l.    

This morning I spent some time on the phone with various government services here in my province of Quebec.  First I tried my local health service centre (CLSC), and they had never heard of a CDE (Certified Diabetic Educator).  All they could offer me was a nutritionalist – but when I spoke to her – she didn’t even understand what a CDE was.  She then put me thru’ to Info Sante after we had both done some searches on the Internet together where she said they should be able to help me.  In the end, the Info Sante lady admitted that CDE’s are really a rarity in my province of Quebec (she had never heard of them – but again – perhaps due to my not knowing the French equivalent it didn’t help).  She said my best option was to drive to Cornwall, Ontario – which is a few hours west of my home – and seek help there. 

Just a few minutes ago, I was finally able to reach my endocrinologist’s secretary – and as usual – she’s finding it strange that because I work as a diabetic mentor – I don’t know what to do.  When it comes to pumping, I’m a whiz semi-kid, but MDI, despite doing it for 40 years; I didn’t really understand how insulin worked, etc. before going onto the pump.  She then told me that my endocrinologist has 10,000+ patients – these are open file patients – meaning – he is BUSY - so basically - no time to see me.  These patients are not just diabetics, but other patients with endocrine disorders.  He is overwhelmed.  The fact that she runs the office on her own is another story (I keep on telling them to hire me – but it’s my darn lack of fluent French again).  She also told me, that going to Ontario won’t help, that they have patients coming from that province since there are just not enough endocrinologists to serve them!  Again, CDE’s, why don’t we have them here in this province is what is going thru’ my head which would take the pressure off the endocrinologist? 

She did say that big changes were happening in the Fall time here in the area I live in for a clinic that will be set up just for diabetics (she was vague about what it all entailed).  All I know is, that as a new diabetic, in my situation, I would be very scared, not being able to have some sort of help when I need it.  To be told to go to ER is not something I feel we should do if we are having issues with our insulin regime.  Are Quebec and the rest of Canada ready for the amount of diabetics that are being diagnosed and needing help?  I hate to say this, but I don’t think so. 

Back to research on Lantus again (hopefully Tudiabetes is working again) until I try my endocrinologists office again tomorrow (this is all his assistant could offer me).  Diabetes right now seems to be taking up much of my time lately, as I try to find that magic combination to having level BG’s.   Yes, Dianna, my pump, aka Salvador Dali keeps on looking better and better to me these past few days, but I must resist the pull of his twirly moustache, and hang in until my next A1C in July.  I can do it; I can do it … with a few gripes here and there from the peanut gallery.

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Related posts:

Type 1 vs. Type 2  |  In a slump and scared  |  Surviving the Holocaust with Type 1 diabetes  |  Edmonton man denied insulin for 20 hours  |  Crack Free #ShowMeYourPump  |  Jenna and The Hypo Fairy  |  Wearing a dress with medical gadgets  |  Questioned by my pharmacist on my insulin regime  |  Pre-op visit with endo at hospital  |  Welcome Ziggy Stardust
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