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Blog Entries With Tag: blood glucose
Posted: Mar 21, 2013
Okay - I've maybe worded the title incorrectly here - but psst - did it get your attention or what?
My HIGH comes from the incredible weekend I just spent with T1D kids/adults, T3's (parents/grandparents/sisters/brothers/etc.) at the 4th annual Children With Diabetes (CWD) - Friend for Life (FFL) conference and expo in Toronto, Canada. I actually am feeling a little depressed about being away from "my family" - missing the sounds of the beep, beep, and whirl, whirl of various medical devices being used around me - that I use myself to stay healthy with my diabetes. It felt so amazing to be part of such a big group - that got each other - we didn't have to question why you were doing this and that - do it in secret like some diabetics I know that hide out in dirty washrooms to test their blood glucose (BG) or bolus with insulin. It was just so cool is all I can say!!!
The last time I attended in Toronto I was part of the staff - and because of that missed out on all the great conferences that are presented. This time though, I wasn't asked to help, and of course, I felt like having abit of a pity party (memories of Joe Solowiejczyk talk about dealing with diabetes are going thru' my head here - I cried so hard with laughter - "Yipee I love having diabetes ... NOT!!!").
This time I managed to get our god daughter, Catherine and her son, Aaron who is a T1D like myself to come along. I do not think they regret one bit about my dragging them along (well - their only regret is that they didn't take up my offer of ear plugs - since I still am not 100% well - and snored ... or should I say ... purred REALLY loud).
Catherine met up with other D-parents like herself, exchanged contact info and I'm hoping they stay in touch for many years to come as their children grown up into adults. So, the 6 hour drive back home after such an exciting long w/e was abit of a drag, as we didn't want to say good bye to everyone, but with good tunes and a GPS (Toronto is a big city) - we got back home safe and sound. Aaron is now putting his plans in action to figure out how to raise monies to attend the CWD FFL 2013 meet up in Orlando, Florida this summer. Obviously, he didn't get enough in Toronto!!!
For myself, it was meeting up with all the parents (some actually were looking out for me with my ears since they follow my scribbles in the sandbox at Diabetes1.org and in other social media areas I post in). Listening to their fears of their children with diabetes and trying to reassure them that with great patience - their kids will do alright, just like I did with having family members that looked out for each other with living with this disease (I hate calling it that - since to me - it's not a disease - it's just a hiccup in my life - that I try to make the best of the situation). Also spending time with the kids, sharing laughs, dancing (okay - it was more like an aerobic workout for this old D-cat) - just AWESOME!
Sadly, this maybe the last FFL being held in Canada, due to sponsorship - sigh. I have to admit, I had hoped that there would be more pump manufacturers other then Animas (you know my reasons there - and forthcoming blog will be revealing abit of a shocking conversation I had with Paul Flynn, Director of International business Development of Animas Canada). Perhaps, if those other companies, and a few more that have products aimed at diabetics all pitched into the pot, then I'll be writing about the next Canadian one that I am able to attend.
If you are interested in checking out the presentations (I know I'm going back to go over some of the notes I took down) - you can find it all at this link!
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Tags: Friends For Life (2) insulin (1) blood sugar (1) blood glucose (1) BG (1) Animas (1) 2013 (1) FFL (1) CWD (1) Children With Diabetes (1) Toronto (1) T3D (1) T1D (1) Orlando (1) Joe Solowiejczyk (1)
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Posted: Jan 18, 2013
So, here’s the deal. Because of the problems with getting any response from Animas Corporation until Jan 28th (I’ve been switched back/forth from Canada/USA/Canada since the notices came out in Dec) on my out of warranty Animas 2020 pump aka George Michael with the little “minor” glitches with his stopping delivery of insulin. I’m still continuing to relearn MDI to be prepared. I’ve done it before (over 40 years prior to going onto the pump actually). I KNOW I can do it again – despite my griping – but as before –my issues with MDI – has always been my basal rates with Lantus. I wish I could use Levemir – I could do better – but sadly – last time I tried it – I had allergic reactions to it – and it was like I was injecting water for my basal portion of my insulin coverage.
Sadly, I’ve had responses (privately or via FB groups I belong to) from many T1D’s who have been pumping on average 20+ years. They are terrified to go back to MDI. They wouldn’t know how to do it – and have asked me how do I know what I’m doing? I guess in away, I’m lucky that I only starting pumping later on in life, that I “sort of” had a handle on MDI prior to the pump, and with abit of head banging, and if you’ve got a good endo or medical team behind you (sadly, I can’t say I do), then YOU CAN DO IT! Maybe taking a break from their pump once in awhile – to get back to their roots – might be something that endos should encourage their patients to do – so incase a) they no longer have insurance coverage for a pump; or b) flung into a situation where pump cannot be used for x amount of day/weeks/months – then taking these mini pump holidays is not such a bad thing. Yes, I know, control may not be as good in the beginning, or it may never be as good as on the pump, but at least you will get over that fear of going off the pump, and with practise, might not mind it so much. I know I don’t - it’s nice not to have the tubing, pump clipped on my pants (dragging the waist band down to reveal my knickers). It’s just a change of pace for me at the moment, relearning how to do (and saving some $$$’s at the same time – since pump supplies don’t come cheap (if you don’t have insurance or co-pays are high), etc.
I’m now into Week 3 – and getting used to it (oh – wait – I have to go check my BG’s – will be back in a sec) … okay – I’m back – BG was 9.9 ml/L (178 mg/dl) – did a correction with NovoRapid (aka bolus to you pumpers out there) – and hopefully my BG eventually levels out to my happy zone of 4.5-5.5 mmol/l (81-99 mg/dl).
Back to my rambling, on the pump, I rarely had to do corrections like I’m doing now – since on the pump – you can change your basal rate right away – compared to the 1 – 3 shots of basal insulin that some MDI folks do. To me that’s one of the great things about the pump – the accuracy of how much you have going into your body for your basal insulin – it can be tweaked per hour – to reflect hormone issues, exercise, etc. With MDI, once the basal rate is given – bing, bang, boom – you are slave to the slow acting insulin for your basal coverage – that’s if it works properly (like it does for me sometimes – then other times – not so good). I really can now live up to my Facebook page of The Roller Coaster Ride of Diabetes with what I’m doing with MDI … but … MANY do it this way, they are fine with what I feel is like being a slave to their condition (since starting MDI – I find I am constantly thinking about my diabetes – with my pump – it wasn’t so much).
The other thing, some MDI folks just don’t give a hoot, and just do the shots without much hoopla over their happy zone range for BG’s (hey, even folks using pumps are the same). Sadly, or maybe I shouldn’t say this, I like to be in control, I don’t want to lose my eyesight, kidney function, put a strain on my heart due to continue up and down of BG’s, lose a leg due to infection … the list goes on when you have diabetes and don’t take your health care by the horns. Remaining as stable as possible is my goal in my diabetes control – with as little convenience for my life as possible.
I discovered after posting on my Facebook wall with the forum post from Diabetes1.org – about having another blood meter with them when they go on holidays – many folks have not just ONE – but sometimes FOUR spare meters with them. Either it’s due to their 3 year old T1D Johnny Be Good fingers destroying one of the meters his Mum has packed in her bag – or it’s just for sanity sake that incase their regular meter goes on a walk about – they’ve got something to fall back on. I know for myself, I’m lost without my meter, and would be probably housebound, unable to go anywhere. That is not me, I won’t let diabetes stop me from doing what I want to do.
I have to admit – I’ve never EVER brought a spare blood meter with me – it’s usually all the insulin paraphernalia that I bring (with the pump – 3X the supplies you would use for the period you are away, insulin and needles, extra BG strips, glucose tabs, spare pump/meter batteries ….). So, some of their replies back really got me thinking – I should consider bringing a spare meter with me – especially since the FreeStyle Lite I use – I’ve had for over 5 years (one Mum said – “ours only last 1 – 1 ½ years). I guess I’ve been lucky that I’ve never had a problem with the meter – but like the pumps – do they ever need to be recalibrated? Hmmm.
So, luckily, with the diabetic conventions I attend a few times a year – I have one meter that I know I can get strips for in Quebec (other meters I have surprisingly enough – when I ask my pharmacist about purchasing strips – they can’t get them for me – or their distributor can’t for one reason or another). So, this time I will be prepared on my holidays – and maybe I’ll do like other diabetics do – carry a spare one in their bag all the time. Again, I’m not a big bag carrying type of gal – but I’m learning that maybe I should just swallow my pride, and start lugging more stuff with me – just incase.
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Tags: bolus (1) basal (1) Levemir (1) Lantus (1) BG (1) blood glucose (1) MDI (1) spare (1) blood monitor (1) Abbott (1) FreeStyle Lite (1) Animas (1)
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Posted: Oct 21, 2012
If you’ve read my blogs over the past year – I’m having difficulties with attaining what I consider for myself good blood glucose (BG) readings with my hormones being all over the place. It’s slightly, no, I should be honest here, is making me very annoyed at my control not being like it was (going from an A1C of 6% to 7.2% makes me cringe at the damage being done internally to my organs).
One thing that I have recently been experimenting with (besides tweaking my insulin dosage on George Michael my Animas 2020 pump) – is trying to eat even more healthy than I do now on a limited budget (hey good food doesn’t come cheap). I have currently started to test out gluten free products in my meals more often – from flour to pasta. You name it, I’m testing out the reaction to these foods against my BG meter results as well as my taste buds. Now, they may not be low carb (gluten free pasta is just the same as regular whole wheat pasta) – but I’m discovering that the lack of gluten seems to not make as big a spike in my 2 / 4 hour BG tests with the results later (say going to beddy byes) are not not showing a result of 10-15 mmol/l (180-270 mg/dl) reading. I then have to give a correction dosage at that time to wake up with the hopes of being in my happy zone of BG reading. Even with a few middle of the night BG tests – where things seem to be alright (e.g. no hypo) after the correction dosage prior to my experiment with gluten free products – I go back up (hello Mr. Dawn Phenomenon). I'm finding the reverse is opposite when I've eaten a meal prepared gluten free!
I’d written a blog last year about Celiac/Coeliac disease after meeting up with a group of teens with Type 1 diabetics (T1D). It seems to be very common when they are diagnosed, and also adults have the same problem (e.g. Ginger Vieira). I’ve not been diagnosed with it, but slowly have been introducing more gluten free products into my diet (and my DH as well – he’s a good guinea pig of my meals). Though, sorry, won’t be able to give up good beer, which sadly isn’t gluten free but you never know – I may change that opinion as I sample beers that are available due to demand from public seeking this alternative type of beer for either health or taste reasons. There's even a blog written on the worst/best gluten free beers available!
So, have any of you tried this test yourself? To see if your BG results are better – with less spiking – more stability? If you have – I would love to hear how your results went – perhaps we can share some recipes – and if you’ve not checked out Katie Zeller from France at Thyme for Cooking …. she’s got some great recipes that are gluten free (her husband is now on insulin after pancreatic cancer destroyed his pancreas). The latest one I tried out (I have tried many) is this one – Barley, Zucchini and Goat Cheese casserole! It was lip smacking, drooling good (and if you're vegetarian - it's a meal in itself - but please do share).
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Tags: Zeller (1) Katie (1) Phenomenon (1) Dawn (1) barley (1) beer (1) Thyme for Cooking (1) blood glucose (1) BG (1) gluten free (1) Coeliac (1) Celiac (1) Katie Thyme (1)
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Posted: Jul 5, 2012
Well, I was expecting what my endo told me a few hours ago when I had my 6 month check up – my A1C was 7.2% - usually it’s 6% - has been for past 4 years ever since going onto the pump. That was one discussion we had – as usual – he’s not keen on the pump – except in children – where he said that less hypos are shown in children (if only I could tell him some of the stories that I’ve heard from D-Mum’s about that – but we could have been debating for hours – while his other patients were waiting). He was not keen on my going onto the pump back in 2008 – when I decided to give it a try – but eventually I proved to him – that for me – it works ….. as well as MDI (multiple dosage injections) do for me. I am lucky that I can do both – but as long as I can afford to pump – as it is a luxury if you do not have insurance coverage / provincial coverage / Sugar Daddy – the regular routine of MDI does work – with abit more effort – but it does work as I’m sure some of you reading this will agree.
The result of my higher A1C is mainly due to being in the menopause stage of my life (oh joy) – and learning to readjust my insulin needs – weight (I have gained 11 lbs / 5 kg). I didn’t need to step onto the scale to know that – rubbing thighs making music to my ears lately (NOT) have been making me wince. Either I learn to take charge, get out of my potato couch mode – or change jobs (what I do now is basically a desk job – prior to this I was much more active) – so I’ve got to get out and just DO IT – rather than write about it – and suffer the consequences. What didn’t help was problems with an elbow and drugs to help it and to top it all off last month’s threats made to my personal life – very unpleasant to say the least – were a test of my sanity – my parents / my bosses / friends / neighbours – all came to my help keep me sane thru’ the days that followed. Hopefully the threats do not occur - if they do – we’re prepared.
The other reason for my visit to my endo – was to finally have him sign the Disability Tax Credit (DTC) forms that I’ve been wanting to give to him since I learned about this earlier in the year (see forum discussion link here) – that will either be accepted by the federal government as being legit or not. He sadly does not like the word “disability” – and in a way – I agree – but heck – if I can get some sort of monies back – to help maintain my health as long as I can without going into the dog cat house – then call me disabled!!! Like I told him, one of the form questions ask – “Does your patient meet the conditions for life sustaining therapy as described above? “ - the answer is a resounding “YES”!! Without it, I’d be not only disabled but most likely dead in a short time. So forms, along with printed up pages from Diabetes Advocacy – will hopefully help him understand what I am trying to attain.
So, as I left the office, into the stinking heat wave outside (a balmy 30C / 86F) – I almost felt like crying believe it or not. Yes, I know an A1C of 7.1% isn’t bad – I know why it is occurring – but I hate having my diabetes control be a victim of it. So, what does this D-gal do to handle the latest result ? She goes shopping – finds herself a really nice blue TIGHT shimmery skirt from H&M (only $10) to be worn at hopefully a future D-OC (diabetes online community) meet up – and driving back home – windows open in the car with music from Caliente (tropical latin music) blasting away. Yes, I am back in my happy place as I plan how to get my diabetes back in control!!! Ole!
Oh – and guess what - when I got home – my blood sugar (BG) was 4.1 mmol/l / 74 mg/dl – right on (this warmer weather keeps my BG’s in good control).
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Tags: menopause (1) DTC (1) Disability Tax Credit (1) Diabetes Advocacy (1) blood glucose (1) BG (1) A1C (1)
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Posted: Jan 4, 2012
I don't usually set NY goals - but this year - I've decided to give it a go - promising myself to eat breakfast in the AM - and hope that by doing this - it aids in losing that belly fat I have ( though it comes in handy for my infusion sets ). I know - bad excuse to stay plump!!!
One thing I've discovered with some of my fav shows I caught over the holidays since I had time to actually watch what I miss as a working stiff - is that missing out on meals does not help in losing weight. Your body goes into panic mode and decides to hang onto those fat reserves when you don't eat on a regular basis. Something I secretly have known all these years, but I hid it in the far regions of my sponge brain.
I am like many of my friends, diabetic or not, that find consuming breakfast in the AM to be a chore at times. It's been something that was always difficult for me and as a child I did eat breakfast, but leaving home, that all disappeared.
So, my goal this year, is to try my best to eat something in the AM, rather then just a cup of coffee until I "find" the time to eat later in the afternoon (bad, bad, bad). Take for exampe yesterday, I didn't have much of an appetite, but I managed to get 1/2 cup of cottage cheese into me, besides my regular java. Amazingly enough, with grazing every 2-3 hours - my blood glucose (BG) averaged 5.0 (90). That was even with eating a blonde brownie in the afternoon at break time. Of course, giving the correct amount of insulin to cover the carbs as well as my basal rate I have set up on my insulin pump helps out alot.
I'm also trying out an "at home" A1C test and posting the results on my Facebook page called the Roller Coaster Ride of Diabetes and also Twitter . I lucked in on getting the 10th edition of the book entitled "Diabetes Mellitus - A Practical Handbook" by Sue K. Milchovich and Barbara Dunn-Long. In the chapter on Labratory Tests - they tell you to do an at home eAG (or A1c). Not that I'm not going to have a lab test done anymore, but the instructions which I'm following by testing my BG before and 2 hours after a meal using your glucose meter will give me a bit of a heads up I feel. I always thought that by averaging out ALL your BG results from your glucose meter would reveal similar lab results - but apparently not according to the authors of this book. The main thing is, I really recommend this book for any newly diagnosed diabetic - or old fart one like myself - since I always am learning new ways to improve the control of my diabetes. Check out your library - you never know - they might have it - if not - ask them!
Happy New Year!!!!
NB: If the picture above doesn't show up on your screen -
you can view the picture at this link
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