Blog Entries With Tag: IDF


Posted: Nov 13, 2014

I've been abit behind in many things #diabetes these past few months, while I deal with other health disorders that are making my usual control of diabetes go out of balance (e.g. today was surgery pre op day - what an interesting experience that was ... again ... #dblog in the making when I can find some time to put my thoughts together).  

I am excited to at least post this little ditty though before the day is over, about tomorrow's upcoming event for World Diabetes Day, that I'm hoping I can at least attend for a few "sessions". 

The World Diabetes Day twitter chat will begin at 12 am ET on Friday, November 14th and end at 11:59 pm EST that evening. 

To find out more details (e.g. a link to help those of you in different time zones - so you don't miss out on your fav #diabetes celebrity/etc.) then go directly to the DCAF (Diabetes Community Advocacy Foundation) website at this link .  

Also, if you are new to Twitter, and find it a challenge like I do at times for this type of fast paced reading/posting - go to TweetChat (remove the automatic Diabetes1.org frame by clicking on the "Remove the Frame" on the left hand side of your screen) then once you are seeing the "clean" page - simply type in #WDDChat14 in the search window to gain access to the  chat session on one page with no fancy ads, etc.  I find it much easier to keep up with the streaming (oh I sound so "with it in cyber world don't I?).  See ya can teach an old cat new tricks \\^,,^//    *** See update at bottom :) ***

Now, if my above suggestions doesn't quite suit your style - then check out other options to join in on the discussion at this link.

Hope to "see" you there at some pooint during the day !!!  

 

NB:  Update to accesssing the chat sessions without pulling out your hair.  I'm not on a mobile so perhaps that is reason for above not working for me (I use my lap top for these types of discussions).  What I am finding works best for keeping up with the fast paced discussion is the following ...      .... so far I don't seem to be missing out on posts, and my ability to put in my "two cents worth" is going through.  Many thanks to Brenda Bell for this tip 

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Related posts:

World Diabetes Day - Wear BLUE!  |  D-blog day – 6 things that you may not know about diabetes - but will now!  |  Diabetic Awareness - what do you do?  |  Blue Friday Bling AND Grilled Cheese  |  World Diabetes Day - what are you doing this month to raise awareness?  |  IDF Diabetes World Congress in Montreal - 13,000 attendees so far  |  Eating a bagel - becomes its own story  |  A new insulin is coming to town! Victoza from Novo Nordisk  |  Patient 13 - documentary on the Islet Sheet Project
Posted: Sep 22, 2013

Every Friday I try my best to wear blue (I'm always wearing my blue circle pin everyday – I collected a few when I was a volunteer at IDF).  The idea of wearing blue on Friday was created a few years ago by Cherise Shockley who is part of the team at Diabetes Community Advocacy Foundation (DCAF) to bring attention to World Diabetes Day every November 14th (Dr. Bantings birthday)  – and well – most of us within the DOC (Diabetes Online Community) just love the colour blue – so we flaunt it with a smile on our face.

Well, this past Friday, I lucked in on a really REALLY nice find.  I have this thing for stainless steel bling – it’s clean (I’m not allergic to it as well as it’s surgical) – not shiny – it’s just purrfect in my eyes.  I saw this indiscreet pendant – with a zircon blue stone set into it – and I just fell in love with it (helped that it was 80%) – it was purrfect colour of blue.  The price was just right – and when the clerk told me that the stone was the real thing – even better.  I am now the owner of a blue topaz – bling bling!

I explained to her about the wearing of blue on Friday for awareness of diabetes.  As usual the confusion with the types of diabetes came up – and I pulled out my insulin pump – showed off the infusion set in my tummy (see only 1 shot every 3 days instead of 30 – whoopee!!!).  Her mouth dropped when she learned of the increase in Type 1 diabetes – and that you didn’t have to be young to get it – that it really has no age limit now – the autoimmune system goes nuts – and BANG – pancreas shuts down without a thank you Mam!!!  She mentioned that she knew someone that might be interested in an insulin pump – despite my shocking her with the price tag if you have no coverage either via work place and/or provincial coverage.  I just told her for me – that so far – no complications of being an addict to insulin – and she said I had a glow to me (of course – I blurted out it was due to rosacea ).

 
So, exchange of my little calling card I always give out  – and off I went with my little bling bag – as I slowly started to realise …. the glow maybe more from just the rosacea – but a low blood sugar.  So, blood test, 3.5mmol/l /63mg/dl - something sweet – and then I was off again (with safe to drive BG/blood sugar) – to head home to get some more substantial grub into my body which was ….. GRILLED CHEESE!!! 

Now did you know that there are a few diabetics out there (and nonD’s) that just LOVE their grilled cheese!!!  Some like it squishy / chewy / American cheese only / Old Cheddar Cheese / you name it there are so many variations to this simple cheesy delight (low carb depending on the bread you use).  A few weeks ago – I had a discussion on my Facebook wall going on about websites devoted to this delicacy – and of course – Scott Johnson – a prominent blogger/member of the DOC has rights on the name of AGrilledCheese.com – along with Kerri McKay filling in from time to time (she’s from Canada – whoot!whoot!).

The tools I use - press grill not shown - ensures no burnt breadTools of trade in picture above - cheese slicer to ensure uniform cheese slices (in this case - I sadly skimped on cheese - should have put more in - but I was hungry - and just wanted to manger).  Brushing smoked olive oil onto bread is my mini-me chef thing.  What you don't see in the above picture - is the $20 press down grill my BFF gave me a few years ago - handy for grilling meats and  ..... GRILLED CHEESE!!!

So, please do not drool on your screen – as you look over the pictures of my greasy mug staring at you (and note the blue bling – I did my best to take self pictures – I really suck at being my own paparazzi). 


Psst - notice BLUE plate below - yuppers - it's all about Blue Friday (aka #BlueFriday in Tweeter land) - not just on my clothing/bling/whatever - BUT my dishware I so lovingly lick off of (saves on dish washing :) )!

 Above - bit of thyme roast pork tucked lovingly inbetween my home made buttermilk bread :)
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In a slump and scared  |  Jenna and The Hypo Fairy  |  3rd Annual World Diabetes Twitter Marathon  |  Questioned by my pharmacist on my insulin regime  |  My First Night with Dexcom G4 CGMS  |  Dreamfields Pasta  |  Are you really hypo unaware?  |  The Brain Battle  |  NO DELIVERY  |  D4D dogs that can smell a low blood sugar
Posted: Nov 4, 2012

How many of you have heard of the Islet Sheet Project? I hadn’t since today when seeing a post about a documentary called “Patient 13”.  I think I must have been living under a rock these past 10 years not to have known about this (how many times have I said this over the years I've been blogging?)!

Scott King, scientist, entrepreneur, and person living with type 1 diabetes since 1977, has been working for close to 30 years on this project along with other team members at Hanuman Medical Foundation.  He is currently in the documentary called “Patient 13” as the project enters into the next phase of animal testing.  Hopefully if all goes well, within 2013 he will be the “rat” for the human trial at that point. 

Seriously though, the scientific info for you Big Bang Theory geeks out there is that the sheet is about the size of a business card, holding a layer of human islets that are encased in a membrane of ultra-pure alginate (in layman terms – seaweed – you know the stuff from the oceans that washes up all the time on the beach?).  It is made stronger with mesh along with a coating on the surface to stop contact between the cells inside and your immune system that would attack the cells and destroy them. Oxygen, glucose, and other nutrients go through this sheet, keeping the islets within alive; and insulin, hormones, waste products go out. It can be removed or replaced at any time and no immune suppression drugs are needed (like the Edmonton Protocol) – except in the initial stage of the “transplantation”.


The October 2012 edition of the Diabetes Voice magazine from IDF (International Diabetes Federation) gives you the inside story of this project that was started 18 months ago by Lisa Hepner (a T1D diabetic herself for 20 years and Canadian – whoot!whoot! to boot) and her husband Guy Mossman after they met up with Scott King and his “team” over a casual meal in LA. 

Boy oh boy – wonder if they need a “Patient 14”?  Pick me, pick me!!!  I mean, this is as close to a CURE as I’ll ever see in my lifetime, having lived with diabetes almost 50 years!


This film will not sugar coat the reality of life with diabetes ~ Lisa Hepner


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Related posts:

3rd Annual World Diabetes Twitter Marathon  |  IDF Diabetes World Congress in Montreal - 13,000 attendees so far  |  A new insulin is coming to town! Victoza from Novo Nordisk  |  Blue Friday Bling AND Grilled Cheese  |  D-blog day – 6 things that you may not know about diabetes - but will now!  |  Diabetic Awareness - what do you do?  |  Day 7 - Diabetes Blog Week - To Find a Cure?  |  World Diabetes Day - Wear BLUE!  |  How I came to be here  |  World Diabetes Day - what are you doing this month to raise awareness?
Posted: Nov 4, 2011

Well, if you didn't know about Lee Ann Thill from The Butter Compartment and her  postcard project - then check it out here  - you may still have time to participate.  I completed a few postcards this week - all done with stuff I have here at home - and sent them off in the post the other day.  It was so much fun (I felt like a kid again).  Below is  one of the postcards I made!  My fingers still have glue on them, making typing a wee bit fun .

Other projects coming up this month during this BLUE month of November - is of course -
WEAR BLUE ON FRIDAYS - which I'm doing today (are you?).  Though not sure about putting the blue coloured contacts I bought yesterday.  I'm not a big lover of placing objects in my eyes.  I'd tried wearing contacts back in the 80's - which usually ended up driving me crazy with trying to put these little bits of plastic onto my eyeball BUT for one of these Friday's - I'll plunk 'em in and see how it goes!  So for now, I have a blue hair extension in along with my favourite pair of blue earrings!

Mike Young from Diabetes in Spain has a great idea that on 11.11.11 we all take a picture that is diabetes related - he has opened up a group on Flickr for posting your pictures you take that day or submit via Twitter with the #diabetes111111 hashtag or directly on the Diabetes in Spain site.  All the details on the "how to's" are at his website above.

The forever fab Gina Capone from The Diabetes Talkfest Blog is having The 6th annual D-blog Day on November 9.  Usually in the past she's asked participants to blog about a certain subject but this year seems we're all getting artzy fartzy and if you are into making up a "scrapbook" page - then this could be your project.  She has the other option of writing a blog which she's chosen the topic - you can check out the details at this link.

Of course, there is the Big Blue Test .  You can do this any day between November 1 and November 14 at midnight PST, by simply testing your blood sugar, getting active, testing again, and sharing the results online (if the link doesn't work - paste the following link in a new browser window -
http://BigBlueTest.org ).  This year, the amount of people who test, a donation from Roche Diabetes Care will help more then 8,000 people with diabetes in ned.  Within the USA, five nonprofit organisations will each receive $10,000 while $25,000 will go to support the work in Latin America by the International Diabetes Federation's Life for a Child Programme for a total of $75,000 in Big Blue Test grants to be funded.   Now is that awesome or what?

As usual the International Diabetes Federation (IDF)  has many ideas for you to celebrate WWD2012 - watch Jean Claude Mbanya - President of IDF in this video to get you even more motivated!!  

Last but not least, Mark-John Clifford from 1 Disease! World! Voice! is holding his 3rd Annual World KID'Z weekend - but this time it won't be held on the weekend but over a 7 day period.  It starts on Monday, November 14th and continuing on until Sunday, November 22nd.  Last year 250,000 people attended this, and this year is looking even more promising for attendance.  This event will be live on the internet via Livestream, Ustream, Skype, Twitter and Phones for everyone to watch and take part in - don't be shy - come in and join on the fun (I do every year).  For more information - check it out at this link.

Are there events I haven't listed above that you are attending or holding yourself? Then feel free to share them here!!!   


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Related posts:

3rd Annual World Diabetes Twitter Marathon  |  IDF Diabetes World Congress in Montreal - 13,000 attendees so far  |  A new insulin is coming to town! Victoza from Novo Nordisk  |  FREE Medical ID Bracelet for month of November  |  Blue Friday Bling AND Grilled Cheese  |  SAE it LOUD Day!  |  D-blog day – 6 things that you may not know about diabetes - but will now!  |  Diabetic Awareness - what do you do?  |  BC/BS Massachusetts New CGMS Policy  |  Diabetes Blog Week - Snap Shots
Posted: Oct 18, 2011
President Jean Claude Mbanya from the International Diabetes Federation (IDF) is calling the world via video to go BLUE for diabetes on the 14th of  November which is World Diabetes Day (WDD).  This day was created by IDF 20 years ago to bring awareness to the global epidemic of diabetes that is hitting our big blue marble.  Many of us don't just bring awareness on this day but all year round wear the blue circle pin that was created in 2006 to become the global symbol for diabetes.

To top it all off, Cherise Shockley from the Diabetes Social Media Advocacy (DSMA) and a few members of the D-OC (diabetic online community) have put together a fantastic video asking to not just wear blue on WDD - but for the month of November to wear blue EVERY Friday.  You can check out this great video at this link to get motivated to join in with us all!

The great thing for me? I love to wear blue!!!





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Related posts:

3rd Annual World Diabetes Twitter Marathon  |  IDF Diabetes World Congress in Montreal - 13,000 attendees so far  |  A new insulin is coming to town! Victoza from Novo Nordisk  |  FREE Medical ID Bracelet for month of November  |  Blue Friday Bling AND Grilled Cheese  |  D-blog day – 6 things that you may not know about diabetes - but will now!  |  Diabetic Awareness - what do you do?  |  BC/BS Massachusetts New CGMS Policy  |  Diabetes Blog Week - Snap Shots  |  Diabetic CouchSurfing and the D-OC
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