Blog Entries With Tag: CWD


Posted: Jul 29, 2014

Well, recently that hash tag statement went abit wild on Twitter and other social media areas.  Mainly I think due in fact to Ms. Idaho’s recent win – and showing off her insulin pump proudly (wonder if she has a name for hers like I have always done with my pumps?).

This past weekend I was sailing with some friends on Jenna’s Journey.  I decide to be brave, and show off my pump after I’d had a splish splosh in the water (I no longer wear my Animas 2020 aka George Michael in water due to trying to keep him functioning as long as I can, as he no longer is under warranty).

So, viola …. here I am poising with him clipped onto me after I came back on board (well – clipped back on about 1 hour later I REMEMBERED that I had to reengage him).  I know …. Bad, bad, bad.

One thing though, since having that picture taken.  George has taken a few dives of his own.  Off my body.  I’ve been using a longer infusion tube (36”) due to the fact I can stick him into my pockets of my button up front dresses, skirts, pants.  He’s easier to access to do calculations, etc.

Well, long tubing means, when he takes a dive, he goes plunk onto the ground.  For the picture above, I only clipped him on temporarily, but after that he was sitting "snug" under my rash guard, until I did something that made him plop out).  Twice on the weekend he went clunk, OUCH, onto the gel coat of our sailboat.  It sounded HORRIBLE.  I thought for sure I had killed him!!!

Of course, I examined him like I would a real life baby, checking for any cracks, etc.  Trying not to tickle him.

And to top it all off, last night, I remember having one dream of dropping him, and the casing cracking.  I think I woke up to that pretty startled, realised I was dreaming, went back to the land of nod.

A Child’s Garden of Verses” by Robert Louis Stevenson and illustrated by Dorothy E. Russell. Introduction and notes by Blanche E. Weekes  ©1928 by The John C. Winston Co.

So, just now, after having done an infusion change (with a 23” tubing for a change of pace).  I’ve now dressed him all up in one of the skins I’ve gotten over the years at Friends For Life events in Canada.  If he ever takes another plunge, at least he’s got that protection.  Much like we have for our mobile phones.

Oh – and notice – I’m back in reduced basal mode again?  This seems to be a common thing with me lately even with my weight gain, which should be reverse, you would think I need MORE insulin. Thank goodness for being able to do that with a pump as well as SUSPEND.

Now, if only I could get a royal blue colour for him …… Animas Canada ….. are you reading this?  Hint! Hint!

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Posted: Mar 21, 2013
Okay - I've maybe worded the title incorrectly here - but psst - did it get your attention or what?

My HIGH comes from the incredible weekend I just spent with T1D kids/adults, T3's (parents/grandparents/sisters/brothers/etc.) at the 4th annual Children With Diabetes (CWD) - Friend for Life (FFL) conference and expo in Toronto, Canada. I actually am feeling a little depressed about being away from "my family" - missing the sounds of the beep, beep, and whirl, whirl of various medical devices being used around me - that I use myself to stay healthy with my diabetes. It felt so amazing to be part of such a big group - that got each other - we didn't have to question why you were doing this and that - do it in secret like some diabetics I know that hide out in dirty washrooms to test their blood glucose (BG) or bolus with insulin. It was just so cool is all I can say!!!

The last time I attended in Toronto I was part of the staff - and because of that missed out on all the great conferences that are presented. This time though, I wasn't asked to help, and of course, I felt like having abit of a pity party (memories of Joe Solowiejczyk talk about dealing with diabetes are going thru' my head here - I cried so hard with laughter - "Yipee I love having diabetes ... NOT!!!").





This time I managed to get our god daughter, Catherine and her son, Aaron who is a T1D like myself to come along. I do not think they regret one bit about my dragging them along (well - their only regret is that they didn't take up my offer of ear plugs - since I still am not 100% well - and snored ... or should I say ... purred REALLY loud). 



Sock Monkey paying attention

Catherine met up with other D-parents like herself, exchanged contact info and I'm hoping they stay in touch for many years to come as their children grown up into adults. So, the 6 hour drive back home after such an exciting long w/e was abit of a drag, as we didn't want to say good bye to everyone, but with good tunes and a GPS (Toronto is a big city) - we got back home safe and sound. Aaron is now putting his plans in action to figure out how to raise monies to attend the CWD FFL 2013 meet up in Orlando, Florida this summer. Obviously, he didn't get enough in Toronto!!!

For myself, it was meeting up with all the parents (some actually were looking out for me with my ears since they follow my scribbles in the sandbox at Diabetes1.org and in other social media areas I post in). Listening to their fears of their children with diabetes and trying to reassure them that with great patience - their kids will do alright, just like I did with having family members that looked out for each other with living with this disease (I hate calling it that - since to me - it's not a disease - it's just a hiccup in my life - that I try to make the best of the situation). Also spending time with the kids, sharing laughs, dancing (okay - it was more like an aerobic workout for this old D-cat) - just AWESOME!

Sock Monkey wanting to get in on the action!

Sadly, this maybe the last FFL being held in Canada, due to sponsorship - sigh. I have to admit, I had hoped that there would be more pump manufacturers other then Animas (you know my reasons there - and forthcoming blog will be revealing abit of a shocking conversation I had with Paul Flynn, Director of International business Development of Animas Canada). Perhaps, if those other companies, and a few more that have products aimed at diabetics all pitched into the pot, then I'll be writing about the next Canadian one that I am able to attend.


If you are interested in checking out the presentations (I know I'm going back to go over some of the notes I took down) - you can find it all at this link


Tired but happy bunch on the road back home!
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Posted: Mar 3, 2013
Well, so far, no reply from the big wigs at Animas Corporation / Animas Canada on my email that was sent in reply to their's over a week ago.  I'm actually hesitating on calling Animas Canada, since they seem to have wiped their hands clean of me - but have promised some Animas users - that I will see this thru' to the very end.  I've sort of lost faith in big corporations like Johnson & Johnson - but I'm trying my best to be patient - and see what the end result is with my pump - that was under warranty when they "discovered" the issue with the internal s/w date killing the pump (and now it appears to be in all their pumps pre-2020).  Which still makes me wonder .... why it was never corrected in the 2020? 

I've been back on dry land now for a few weeks since my holidays.  I'm still doing the ol' MDI (multiple dosage injections). I'm actually not minding it.  Yes, my tummy that takes all the NovoRapid shots during the day for meals and corrections to my blood glucose (BG) looks abit bruised.  That's from the occasional blood vessel being poked with the pen needle - despite it's 32 gauge sleekness.  My DH noticed my tummy the other day - and I said - get used to it - my bikini modelling days are over.

I'm actually not missing the pump at the moment - I can't believe I'm saying this in public. The pump is great for some occasions - e.g. where accessing areas of your body for a shot make things difficult or you have a change in activity that requires less basal insulin. Other than that - I'm getting used to it again.  I'm trying not to be so OCD over the fact that my BG's are not as well balanced as they are with the pump, but with more BG testing and adjusting of basal and/or bolus insulins - I am getting the hang of it.

My god daughter who is coming with me to Toronto this w/e for the Children With Diabetes event (3 days of education / fun for kids & parents / etc.) - can't imagine putting her 13 year old onto shots. His diagnosis was at 6 (like myself) and I think he was put onto a pump right away.  She said she'd have no idea what to do if he was on MDI. That is a bit scary - andI think if I was an endocronologist or educator (CDE) - I would have newly diagnosed patients hating my gutts - since I would insist that they at least learn how to control their diabetes by the old fashioned system of frequent injections. I'd be like Nurse Ratched from One Flew Over the Cuckoo Nest .

I also am still looking into the Roche ACCU-CHEK Combo pump as a possible replacement to Animas.   I'd heard thru' the grapevine that it DOES have an end date - that it only works for 7 years, but after I contacted the rep at Roche that I had met last summer - they told me in their older pumps, this was the case, but not with the pumps now sold (phew).  The one great thing about the Roche pump is that it was $1K less and had a 5-year warranty.  Good for those of us who are paying out of pocket for a pump.  **UPDATE** - see comment below dated March 6th.

Again, until I have some sort of closure with Animas Corporation/Animas Canada it's sort of put me off of any pump manufacturer at the moment.  So, for now, I'm standing on the edge, waiting in ancipation for an answer that is honest and not legally formatted with their reply (e.g. please write in easy to understant terms).



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Posted: Aug 8, 2011

This blog is dedicated to my Mum – who thought my last blog – The Antidote was written while I was having a hypo.  No Mummy – I was on level playing ground – but just having fun with writing! 

I attended my first Children With Diabetes (CWD) Friends for Life Canada International Conference and Expo in Toronto.  I lucked in on getting on as part of the staff thanks to Jen Hanson  from
Connected in Motion, though sadly, because of working, I missed out on some great discussions, which I think is what the adult (and parent) participants rave about.  So, I had no time to get fun photos, etc. but at least I got to schmooze with some of the CWD staff / DRI’s (Diabetes Research Institute) VP Tom Karlya on my first night.  I think he’ll always remember me as the pole dancer wanna be – and an “ancient” diabetic without any complications.  Most people that I met at the conference when we discussed about their child’s diabetes, and I mentioned my diagnosis date, along with my age, they were like Tom, not believing my age.  What can I say?  Good genes (e.g. Levis are my favourite) - as I blogged earlier this year – insulin is a youth preserver.

I think the most rewarding part of this whole event as I felt very much alone as a newbie to the staff as we all didn’t meet up prior to the conference starting so I felt abit like an outsider  – was meeting up with many parents / kids / young adults!   I hope I gave many of the parents I spoke to an insight on how their loved ones will turn out with the right guidance and tools at hand To me, this is what sticks in my mind the most, giving parents hope that diabetes isn’t all bad.  I always wonder how it would have been for my Mum if she’d had the support of others that can now be found on the Internet. 

I did manage to attend the closing one hour speech for about 15 minutes that was given by CWD President
Jeff Hitchcock.  I had to walk out of it though due to not liking the push for parents to put their kids on insulin pumps and CGMS’s (Continuous Glucose Monitoring Systems).  Maybe because of Jeff being American and that majority of pump users are based in that country, I found it abit too much pushing the product.  Because I was raised on MDI (multiple dosage injections) for most of my 44 years of being a diabetic – it has not caused any problems similar to what he was showing as examples.  Perhaps other discussions that I couldn’t attend over the two days did go into diabetes control by MDI – I hope so – because for many of us – using a pump is unaffordable if you do not have private medical coverage from work/government help.

So, Jeff and or Tom, if you are reading this, consider bringing me in to make a speech to parents next years events as to how having diabetes for my length of time can show that your children will lead healthy and productive lives – I have – diabetes has never stopped me from doing anything I put my mind to!!!  I promise not to do any pole dancing :)


Picture credit below - Nicole Pitre-Cozad from
We CARALot Blog


Photo credit - Frank Mannella of Animas Canada

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Posted: Jul 28, 2011

Well, I just got back from a whirl wind tour of Vermont. Yes, I went in my little Smart CDI and …. it did not break down on me – Whoo! Whoo! My little French fry machine as I like to call it – as it’s built in France / engine is from France – is my way of making myself not feel so bad about the woes it’s had over the past 6 months with a mechanic buggering up the car. Smartie is now all better.

So, back to the topic on hand here.

I’m at the American border and the guard asks:

“What is your purpose for coming in the USA” In his mind he is going – where the F is the ass of this car????

I, the friendly Canadian say - “I’m going to visit some friends in Burlington and also attend an art show which I’m going to be acting in”. Oops as usual too much information – I’m so friggin’ honest!!!  Should I have mentioned to him I was also doing some table top dancing????

“Are you going to be paid for this and how much?” says the Border dude – thinking to himself – she is a spy – come to destroy our country with this disguise of a story!!!  Hmmm, wonder how fast that little French fry machine with no ass can go???

“No sir – it’s all volunteer – just out to have some fun with diabetic friends” says little FatCatAnna thinking in her head …. but I will make TONNES of money once the video of this event I’m attending goes viral / my pictures go into Vogue and I receive my Oscar next year and I will thank you … the friendly American Border dude for making me feel like an evil person at your border crossing when you should have welcomed me without any questions like John Candy.

Anyway, the jist of the whole thing since I guess I look like a threat to your country – but it’s okay – I’m over it now is that I just came to the good ol' USA to have abit of fun. I laughed / ate / petted Blue the doggie / farted & belched / had fun with Ginger Vieira along with a dinner table of 20 people and 10 guests. We all participated in this great art show entitled
The Antidote that Dana Heffern also a Type 1 diabetic was awarded with a scholarship to fund as she attains her MFA (Master of Fine Arts) at Goddard College in Plainsfield, Vermont. Dana wanted to show what Type 1 diabetes is all about since there is sometimes a misunderstanding about Type 1 and Type 2 diabetes.


Ginger and moi (sans my black skin suit I usually wear - you know - the one with the little cape?)

I was asked at the last minute the same day of the event to be one of the 20 “actors” at the dinner table – where we were served up delicacies that we weren’t quite sure what they were. Alongside of us were nondiabetics who had brand new BG meters to use (yes they had to do blood tests) – along with needles (short needles – lucky buggers) – pretend insulin (saline). We “experienced” diabetics helped them out with determining what the carb amounts were that we were eating, and what we all thought appropriate amount of insulin to cover what we were gorging out on. We had to guesstimate for most of it; because the food was sometimes not recognisible (we only got the actual menu mid-way – which helped abit). All I can say, I was a stuffed pig after this episode of 3 fabulous courses (no wine – darn – the chef drank the bottle I’d viewed in the cooler earlier). Through the majority of it – I sadly was having a hypo (went as low as 2.9 mmol/l or 52 mg/dl) – but I was well taken care of by Alissa (my Mummy) for shoving a lollipop in my mouth (we had candies in fancy containers at the dinner table).

To top it all off – the audience was allowed to sit at the table with us and “observe” – though a few wanted to talk and got frustrated they we weren't sure if we should respond as we were told not to notice them (I did alot of winking to them - I'm so naughty). Through the whole 2 hour production – we were being photographed and video tapped (the reason for my upcoming Oscar nomination of the woman wearing crotchless underwear – this will be another blog discussion at a later date).

All I can say – WOW – another great experience in my life as a diabetic that I’ve been blessed with since starting to blog and mentor about diabetes a few years ago. Sharing how we take care of our diabetes – learning new things (
mini-dose glucagon) with others.

Even better? Getting to feel up Ginger’s muscles in her forearm – whooza – she is one strong Mama – should have had an arm wrestle with her at the dinner table …. but that will be another story for another blog one day (better start pumping iron and grunting like a pig!!!).

To check out more pictures from Dana's event – go to this link at my Flickr account!  UPDATE - HERE'S a SHORT VIDEO FROM THE EVENT THAT I POSTED HERE AT DIABETES1.ORG IN 2012!

Can’t wait for the next diabetic meet up which is …. TOMORROW …. at the Children With Diabetes Friends for Life 2011 conference and expo in Toronto. I’ll be taking the train as the little Smartie will be staying behind on this one – while I have a semi relaxing trip by train – and then get to work with D-teens over the next few days!!! Sleep???? Ahhh – I’ll wait until I’m older for catching up with sleep.

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