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We All Are One - Being Part of the Diabetic Online Community


Anna's Blog
By: FatCatAnna

The Roller Coaster Ride of Diabetes! Whoo! Whoo!

I am a Type 1 diabetic diagnosed back in the early 60's as a child.  I am living in Montreal, Canada and enjoy scribbling about diabetes from time to time. I’ve had my ups / downs just like any person would experience with going through life - diabetic or not.  My motto in life?  Diabetes does not control me – I control it!! 

You can find more posts/discussions at my Facebook page called "The Roller Coaster Ride of Diabetes" and also on Twitter under the name of FatCatAnna.  Feel free to follow me at both places or send me a private message!


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 Blog Entries
The joys of having Bowie my CGMS – Chapter 1 - Sep 02
 Okay, for those of you who have never read my #dblogs before, I give names to all my little gizmos that I use for controlling my diabetes.  What we have today, ...
more
In a slump and scared - Jul 21
It’s rare for me to compose a #dblog that is not all “chirpy chirpy” … I think the last time I did one that was kind of down was at Diabetes1.org ...
more
Surviving the Holocaust with Type 1 diabetes - Mar 27
  " To the best of my knowledge, I am the only diabetic who survived years of imprisonment in German concentration camps. This is my story "   The above words ...
more
Sugar and Your Health - Mar 06
The other day I emptied out a 4 kg (about 10 lbs) of white sugar that I had dated a year ago when I opened it.  I use white sugar purely for cooking (I make my own ...
more
Eating from the ground - Yuca Fries - Feb 20
I am home now from a working holiday, in the Bahamas and Miami.  Despite the weather being abit cooler then normal (they only get 2 weeks of winter - we were there in ...
more
Posted: Nov 30, 2010 13:05
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  • We All Are One - Being Part of the Diabetic Online Community

    I was one of the many bloggers asked to post a guest blog at the DSMA (Diabetes Social Media Advocacy) website during the month of November.  You can read some of the great discussion that followed there after my post. 

     

    Being a Type I diabetic and/or having a Type I child can be extremely demanding, both mentally and physically.  I never really thought about this before joining up to DOC’s (diabetic online communities). I didn’t realize that others were in the same boat - I basically dealt with my diabetes on my own, and it’s been a roller coaster ride.  Yes, I do have an endocrinologist that I see every 6 months, but all he is concerned about is my A1C reading.  Sometimes we’ll discuss the ongoing research that has come across my desktop, but basically, he feels I do a good job managing my diabetes, and leaves me to it.  That’s where the DOC has played an important role in my life, as it has for many other diabetics around our big blue marble.  I can talk about the day-to-day issues, the ones we all have to live with.

    The ability to adapt to this chronic disease is really a testament to the human spirit and our ability to adapt to difficult situations.  However, as we adapt I think we can lose some of our perspective.  I have read in blogs and/or forums where diabetics are struggling with issues and looking for help.  The responses they get from other diabetics are sometimes so self-righteous and insensitive that they are downright hurtful, and honestly sometimes have made me want to no longer be involved in the DOC.   Because we are all so different (e.g. age, metabolism, activity level, and other medical issues), the level of difficulty in maintaining ones diabetes varies from individual to individual.  When a parent writes that they are struggling with their child’s diabetes, do we step back and consider that they may be a stressed out single parent who work long hours to support their family?  Or perhaps that active child may have other health issues impacting their overall diabetes care?  If you have near perfect control but do not exercise and/or maintain an active lifestyle, you may think we have it all figured out!  The question that goes through my head at that point …  

    Are you really doing what is best for your overall health, and how can I or someone else judge you? “ 

    One specific subject that really bothers me, is when someone blogs about pump related problems; they are either immediately dismissed as to not knowing what they are doing - “go read the manual you dummy, I don’t have this problem!”  or “it’s a one in a million chance” and “it can’t happen to me” type of response.   That is BS as far as I’m concerned – especially with some of the emails I’ve received in confidence ever since I blogged and opened up forum discussions about the pump and Stephen Krueger at Diabetes1.org and a few at Tudiabetes.  Stephen's insulin pump primed the whole contents of his insulin cartridge into his body while he was sleeping, resulting in his untimely death.   

    We have to realize that  insulin pumps do malfunction, perhaps more often then we are willing to admit.  Earlier in the Springtime the FDA called a meeting to discuss the numerous reported problems with insulin pumps – and since then – the ball has started to roll (more information can found at this link.  I understand the desire to not want to confront this issue, but it is ultimately better for all of us to take each story seriously, to encourage those that may have had a bad experience to come forward, and to hold the manufacturer’s accountable.  

    Yes, we all do dumb things sometimes, and unfortunately diabetes is not very forgiving when this happens.  Let’s have some empathy towards our fellow humans who are impacted by this disease, and always show our civility when we are in forums or responding to a heart-felt blogger.  We are bigger than this disease, and lets help each other beat it!

     

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