I am so excited! This is my very 1st attempt at a blog. I have been told by many diabetic professionals that I should consider sharing my thoughts and ideas in a blog. diabetes1.org seems like a safe place to start. I did post a comment on the cure forum with most of my demographic info, but here it is in a nutshell: 46 years type I diabetic, 1st person in the USA to receive an Islet Cell Implant with IV Bone Morrow Infusion. I unfortunately rejected 20 months later. The procedure did not work for me, however the failure of my Implant aided research to refine the procedure which has helped others with Type I.
By: JujuPhi: Mar, 03, 2009 10:53 AM
I would like to read more about the Islet Cell Implant. I am actually going to do more reading about it. I have been a LADA for over 5 years now and till this day I would like to go back to being a non-diabetic. I know that this is not a long time comparing to your 46 years, but it is long enough for me! Please post more, so I and many others can learn from your diabetes experiences!
By: dorisjdickson: Mar, 03, 2009 09:15 AM
20 months without insulin is hardly a failure. I think you mentioned in your post you had to stop taking the immunosuppressants; so, that is why the rejection. I'm sure researchers expect anyone who has to stop the immunosuppressants to lose new beta cell function.
You took a risk and probably enjoyed 20 months you otherwise would not have had. In addition, you put one foot forward that helps every other auto-immune related diabetic on the planet. I, for one, thank you for that.
Doris J. Dickson
By: FatCatAnna: Mar, 02, 2009 20:00 PM
I'm excited too - to see someone else talking about their life experiences of living with diabetes!!! Welcome to Diabetes1 - hopefully you'll enjoy posting here like I do - though sometimes I've felt very much alone - but you sound like a real trooper - so it could start to get abit fun with you onboard.
So, Islet Cell Implant with IV Bone Marrow Infusion - very interesting - you've got me wanting to go to my search engine and start learning about that procedure. Sorry to hear it didn't work out. Did you have to take anti-rejection drugs - not a fun part I expect? Like you say - at least you aided in research for helping other Type 1 diabetics. I know here in Canada we have what I believe is the Edmonton Protocol (I wrote about in somewhere here in the forum section with links) - for Islet cell transplants - but it's only is used on diabetics that are not doing well on other methods of controlling their diabetes. I never met the criteria - sad to say - you almost have to be on your death bed - so I just kept on playing darts on my body with insulin injections (I now use an insulin pump and am enjoying it still).
Anyway, can't wait to hear more about your adventures in living with diabetes - it can be a roller coaster ride at times - but the main thing - where here and alive!!!
By the way - my name is Anna and I live in Montreal - diabetic of 41 years. I wish I could see your profile (can you see mine - have always been curious about that?). I'm still new to this website - so there's a few things here that aren't the same as other forums I belong to - where you can find out abit more about the person who is posting. Hopefully they'll change things with time - but it probably all depends on dollars, etc. I'll see if I can PM you - again - since I think we can do that here at this website.