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Comments from Chris M. of the Body1 Team.    


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 Blog Entries
A Salute to the Coolest PWD I've Never Met- the Desert Dingo Racing Team - Nov 17
Inside my straight-laced New England Ivy League-type persona lurks an appreciation for those who push the envelope with their creativity.  So far, no one in the diabetes ...
more
Lemonade from Lemons: Anyone Can Make a Difference - Aug 27
Earlier this summer I had the good fortune to be a presenter at a conference on the use of Social Media in medical marketing and education.  Two of the most interesting ...
more
iPhone use in Insulin-dependent Diabetes - 1 million in 2009 - Jul 30
  How might smart phones (also known as handheld computation devices) such as the iPhone change diabetes care?   Many folks know that when Apple previewed their new iPhone ...
more
What Pharma Companies should Know about People with Diabetes - Jul 03
This is my first official blog entry and it is a "shout out" to two great bloggers in the diabetes condition community- Manny Hernandez of TuDiabetes and Kerri Morrone Sparling ...
more
A Salute to the Coolest PWD I've Never Met- the Desert Dingo Racing Team
Posted: Nov 17, 2009 18:20:11 2 Comments.
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  • Inside my straight-laced New England Ivy League-type persona lurks an appreciation for those who push the envelope with their creativity.    So far, no one in the diabetes world IMHO, has topped the Desert Dingo Racing Team: http://www.diabetes1.org/desertdingo.cfm ; (sorry, Nick J..).

    First, what a cool name!    It's macho without being aggressive, evocative without being trite.   It implies perseverance.   And from what I can tell, those characteristics really seems to represent the Desert Dingo racing team.    Several of them have diabetes, and have worked hard to "keep on truckin" themselves.    Yet that hasn't stopped them from turning their passion for custom built cars and off the road racing into a novel fund-raising vehicle for diabetes research.   

     I've really enjoyed following their preparations for the Baha 1000 on their blog: http://www.desertdingo.com/blog/ .   Kind of like "Monster Trucks" with a purpose!    You'll see that they're also really handy with tools which I also admire as a mechanically inept computer geek.     Oh, and Special thanks to FatCatAnna: http://www.diabetes1.org/blogs/Annas_Blog, an "uber cool" PWD herself, for introducing us.

    So, if you can, support some of the coolest PWD around- the Desert Dingo Racing Team.   Record your 12 sec. PSA: http://www.diabetes1.org/desertdingo.cfm , follow their exploits, and consult a professional before you pick a welding torch or steering wheel and try to imitate them!

    Lemonade from Lemons: Anyone Can Make a Difference
    Posted: Aug 27, 2009 10:59:48 1 Comment.
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  • Earlier this summer I had the good fortune to be a presenter at a conference on the use of Social Media in medical marketing and education.    Two of the most interesting folks presenting there were bloggers from the diabetes community, Kerri Morrone Sparling of sixuntilme.com and Manny Hernandez of tudiabetes.com .  What really struck me was how they both took a challenging chronic condition, Type1 Diabetes, and turned it into a platform for health advocacy.   

    As a result both have become leaders for progress in this field, challenging both technological progress and social sterotypes.    They're not only well-spoken, they're funny and fun.    They have a rich social life as a result.    While I went to my hotel room to answer e-mail and Skype my family, they went out to a hip restaurant with a group of online friends from Philadelphia.    They were all meeting face to face for the first time but had bonded based on mutual support and advocacy.

    Since studies have shown that people dealing with a chronic condition like diabetes can become isolated, I think there's a lot to learn from Kerri and Manny. Anyone with a diabetes (or any chronic condition) can enrich their network, although it can take some work at first.

    Here are a few of their insights:

    The Big Picture: http://www.diabetes1.org/Multimedia/Vlog_Kerri_Sparling_Just_because_you_cant_see_it

    On Advocacy:   http://www.diabetes1.org/Multimedia/Vlog_Kerri_Sparling_on_Advocacy_for_Diabetes

    On Why People with Type1 and Type 2 Diabetes share common goals: http://www.diabetes1.org/Multimedia/Vlog_Manny_Hernandez_on_Type_I_and_II_Diabetes

    Next Post - Great insights from an emerging blog voice (Kerri & Manny, here comes GK...!)

    iPhone use in Insulin-dependent Diabetes - 1 million in 2009
    Posted: Jul 30, 2009 12:08:03 3 Comments.
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    How might smart phones (also known as handheld computation devices) such as the iPhone change diabetes care?   Many folks know that when Apple previewed their new iPhone 3.0 OS that they also showed a number of potential medical applications.  One showed a blood pressure cuff with readings being exported and displayed (and presumably saved) on the iPhone.   Another showed a blood glucose meter (BGM) beaming readings to an iPhone.  (for more with pictures see this coverage of Apple OS 3.0).

    It is important to note that both of these demonstrations were just that- demonstrations- they showed capabilities and potential rather than "available now" features.   However, there are a number of applications available now for use by folks with diabetes.   Most are stand-alone like calorie counters, glucose logs, carb counters- they are iPhone 1.0 applications and don't use the full functionality of the iPhone such as geo-positioning, auto-call, online sourcing, etc.    But newer, more integrated applications for people to more fully manage their diabetes are emerging.

    But this is only significant to a small subset of people with diabetes, right?   Well, yes and no.   About 6% of people with diagnosed diabetes in the US have iPhones .   That's a small %, but in absolute numbers, it's about 1Million people!  

    Here's a bit of market analysis- comments and couterpoints are welcomed!   Click on the image below for the full 7 page market analysis 

     

     

    What Pharma Companies should Know about People with Diabetes
    Posted: Jul 3, 2009 23:59:27 1 Comment.
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  • This is my first official blog entry and it is a "shout out" to two great bloggers in the diabetes condition community- Manny Hernandez of TuDiabetes and Kerri Morrone Sparling of Six Until Me. Exactly a week ago I was lucky enough to be a joint speaker with them at a conference on "Bio/Pharmaceutical Emerging Media Optimization for Consumer-Focused Marketing" ("#Pharmedia" on Twitter) in Philadelphia.

    Kerri & Manny gave a joint presentation just before mine. It was so good that I forgot to have the jitters about my upcoming talk and focused on what they had to say. They gave 3 pieces of excellent advice based on their personal experience with T1 Diabetes to the medical and pharmaceutical marketers who were there-

    1. We are People First

    2. Trust is Key

    3. Embrace Adverse Data

    On point 1- "People First", Kerri said something really powerful - "For the 7 or so minutes that the doctor is examining me in her office, I am a 'patient'. The rest of the time, I am a 'person'."

    On point 2- "Trust is Key". Manny and Kerri reminded everyone that despite the rise of online media, people still want to put a face with a name, and that trust since it is "organic" takes time to establish.

    On point 3 - "Embrace Adverse Data"- Manny told the marketers present that adverse data will be discussed regardless, and that the pharmaceutical/ medical industry would serve itself better by a candid engagement in the discussion. (In other words, intelligent members of the consumer/patient community can make measured, rational decisions on their own about therapy risk-benefit).

    Great points- and fantastic slides, too (one was a single bullet point superimposed over a herd of enormous elephants in a rear view mirror). After their talks Manny and Kerri were kind enough to share their thoughts on camera with me about important issues for the whole community of those with diabetes. So, more, coming shortly.

    Manny's blog is: TuDiabetes and Kerri's blog is: Six Until Me.

     

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