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Babylon's Blog

It's been a while

Babylon's Blog
By: jessbaby

Age: 34
Location: Bostonish
Type: 1ish
Gender: Female
Occupation: Consultant
Sign: Scorpio

<< June 2008 >>
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 Blog Entries
The new review - Mar 14
The tool for reviewing blood glucose meters that are actually used by diabetics is a really great addition that I've noticed to the website. It gives you a star rating system ...
Here at the Expo - Mar 14
Well I'm back working with body1.org helping people get connected as a community. The music is really loud, which seems to happen to us whenever we are at an expo. The people ...
Frankenstein, natch? - Jul 18
So I got this really interesting link about a project in Chicago that is in Phase I trials, I think, transplanting islet cells into humans, and it's working. I'm in phone ...
Agave - Jul 18
Well I did find agave nectar a Whole Foods, and I haven't tried it yet but next time I have some tea I'll use it instead of sugar and we'll see what happens. it says you ...
What's Up? - Jul 16
So I've been doing a little research on the Manuka honey tip, which was not very promising. But there's a lot more on the Agave Nectar stuff, both from other diabetes websites ...
Posted: Jun 6, 2008 18:10
  • 1 Comment.
  • It's been a while

    But now i've got something exciting to talk about. Charcot Foot. Never heard of it? Pray you never do again. Do some googling and then, if you are a diabetic, take the foot thing seriously. I have been diagnosed with Charcot Foot and it's not a pretty picture. I'm in a walking cast with strict admonitions to bear no weight on it. For up to five months. Five months. Good bye job. Good bye health insurance. Good bye life. Well, not really life but...life as I knew it...yeh. Please please if you're not taking extra good care of yourself, start now. Get the information, get supportive folks in your corner, reach out to whomever you can however you need to, and get yourself healthier. It's doable. My diabetes is actually under really good control right now, and I'm hit with a number of other things to contend wtih now. The Charcot Foot is a direct result of the neuropathy and some trauma to my foot, but it doesn't help that I was misdiagnosed with osteomyelitis and they missed the Charcot entirely. So it's also very important when you're in a hospital setting to make sure you pester them with questions, do as much research as you can, inform yourself and make them take care of you. Don't accept things if they don't make sense, don't just go along cause it's easier than arguing. The squeaky wheel gets the grease, especially in the HellMO times we're going through now, and sometimes things slip through the cracks. I was on IV antibiotics for six weeks before I pushed for an explanation of why my foot wasn't getting better and saw a specialist, finally. Don't take it lightly, don't chalk it up to "they're doing the best they can" cause their sole job is to make you better. And no one can do it for you, not a healthcare proxy, not your parents (unless you're really young and probably not even reading this), your kids if you're older, or a spouse or significant other. It's a self-managed disease, and it means even more to me now than it ever did with other complicatiosn I've faced. Thanks for letting me vent. If you have advice or suggestions, feel free to send them my way, in public, in case other people are wondering and afraid to ask. Ta! And take care.

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  • By: Elena_Ivanova: Jun, 09, 2008 16:29 PM

    Poor you!!!

    I have never heard of Charcot Foot before but I did google it.Seems like it is indeed a very serious condition.How can it be possibly misdiagnosed?What kind of doctors could that be??!

    Get better!


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