This blog post is dedicated to Susan Townsend who died of a stroke on April 10th. She’d become a diabetic in the 1980’s, and she struggled with it, she admits that she thought she was the “ world’s worst diabetic. Diabetes eventually lead her to become blind in 2001 and almost 10 years later she suffered kidney failure and her eldest son Sean donated his kidney after she’d waited a few years for a donor (now is that a son or what?). I thoroughly enjoyed reading her books over the years – if you’ve never heard of / or read ‘The Secret Diary of Adrian Mole Aged 13 ¾ “– I am saying “shame on you “ – go to your library, bookshop, get thyself a copy – and keep on reading all of her fantastic books.
Wednesday, February 19th
I’ve sort of been out of the loop lately – especially with diabetes discussions on the Internet – and composing my entertaining blogs. My life lately has been overwhelmed by dealing with thyroid issues – or at least that’s what I think it is – with my lab work for endocrinology showing the signs. My endo I see for my diabetes (the one that was against my going onto a pump, etc.) – has been telling me for years that “eventually you’ll be on meds” – that’s despite my asking him if he agreed with the American Association of Clinical Endocrinologists (AACE) new guidelines for TSH normal range and recommended to change it from 0.5-5.0 to 0.3-3.0 (this was back in 2002!). He rolled his eyes – end of discussion. At that time - I was over the 3.0 range - and feeling like crappola (lose weight - eat less - exercise was his basic advise).
Today – after my lab work from the previous week for my GP – where I had ticked off extra tests for my thyroid panel rather than just the TSH which really doesn't reveal all the dirty details. I pay 20% out of pocket for these tests to be done in a lab rather than government run clinic - wher they don't allow the patient to have a copy of their results - ssshhh - if only I lived in France). My feelings are, it's my body - I want to know how to make things better along with my health team. This time - thank goodness - my GP obliged me with giving me a prescription for Synthroid– the lowest dose possible – it’s a start - to hopefully regaining a normal life again.
Dare I mention that it’s helpful to have your DH with you on a doctor’s visit – because I think otherwise she might have dismissed my pleas for help (I was getting desperate - to the point of jumping out of a tall building and going splat).
Wednesday, March 5th
I’m really behind on keeping up my journal. actually have to admit – that I now understand how an adult – being diagnosed with diabetes feels. It’s very daunting – when you don’t know what the heck you are dealing with. For myself – by doing research – trying to learn all the terms that are associated with my thyroid are just the same as diabetes. It’s mind boggling!!! Personally, I’m finding having diabetes – even with the roller coaster ride I’m going on currently with my blood sugars (#BGnow) going wacko (oh – did I mention I’m peri-menopausal right now – I’m a constant bleeding and emotional pig – which I’m trying to cope with so I don’t worry my DH). Diabetes is the easy part of my life at the moment compared to what I’m dealing with having had it since I was a child – it’s like riding a bike. Thyroid disorder – is like learning how to surf (whack goes the board into my head – do people wear helmets when they’re learning I wonder.
Monday, March 17th
Heart burn city!!! Never experienced this before. I don’t know how people put up with this when it’s caused by eating. Mine I think is caused by the Synthroid. So far, no success with having GP return my call for advise - just her RN - saying she'd follow up. Nothing. Mint flavoured calcium packed Tums - delicious - semi affective on the pain. I’ll keep on popping the Synthroid pill – which I’ve discovered – tastes slightly sweet (reminds me of baby aspirins – that some kids used to pop like candy – bad, bad, bad).
Tuesday, April 1st
Urrrhhhh!!! Of all days - April Fool's - I’ve had enough of this – doubling my dose – did I tell you some of the symptoms I’ve been having over the years??? Sit back – have a drink – gonna tell you a story about a man call Jed …
Weight gain!!!! I’m afraid to pull out the scale – at my GP’s visit – I’d gained 10 pounds (4.5 kg) over a few months. I have rolls of fat on my back now – never had that before) Muu Muu dresses are my fav thing to wear – except difficult in winter months when you have to go out! And with my difficulty with staying warm (I’m frozen all the time – so unlike me – I even wear a hat inside the house – brrrhh – it’s Spring time!!!). Therefore, I’m actually not going out much anymore – no energy – I want to sleep like I’m Sleeping Beauty. To be happy about waking up in the AM – would be oh such a wonderful thing to appreciate again. It’s been close to 3 years since all of this started (and the happy pills did nothing (you can see my talking about it in this vlog I did a few years ago) – they are a common thing given to undiagnosed thyroid patients – sad to say)
Friday, April 25th
New labs – TSH level is down – but other levels have changed – along with my antibodies (TPO) now being even higher. I’d tried posting my results in a few groups I belong to online – but no replies (they mostly are more concerned with a natural thyroid medication aka Canadian Bacon/CB that I’ve been told to go on – but again – one step at a time with my health team). It is made from desiccated pig thyroid that has a balance of T3/T4 – unlike the T4 Synthroid. The only problem I’m finding – it varies on how it works depending on the manufacturer – and sometimes isn’t covered by health insurance plans I think due to my being on the synthetic one – that they think I’m a whack job (just like pumpers think of folks who do MDI – aka multiple dose injections). Also, I do know that the Canadian units in our lab work differ from USA – but so far – like with blood sugar conversion rate – I’m not having much luck (or time) to locate anything. So for now, I’m happy with what I have found in a great article written by Dr. Marina Gutner at Outsmart Disease.
Monday, April 28th
What I’m learning from all the research I’ve been doing with pro-CB folks – and folks on combinations of T3 / T4 meds – like diabetes – YMMV (your mileage may vary). None of us are the same on medications – like Levemir insulin (insert blog). I did try it again after my GP told me that Lantus causes weight gain. I have an allergic reaction to Levemir – it pools up in a hard lump – despite the small dose).
I think having patience to find the right combination of meds / diet / exercise – like any health problem – takes time. I am trying to be optimistic here – as I meet up with my GP tomorrow – and hope she understands all my babble - if not - it's onto my endo the following week.
Hmmm, maybe I should give her this blog? So, she’ll understand what I’m going through. That’s a plan … that’s a plan.