I have been diabetic for a few years now. I think sometimes, how I took care of my myself sometimes was maybe a shot in the dark – and often look at myself in the mirror thinking … “Wow – you aren’t doing so badly” with the technology that took care of my diabetes from the 60’s and up. Things are much better now but only if you can find someone who can take the time to go over all the nitty gritty details of how to keep your blood sugars in control, either with pills and/or insulin. At the same time, we also have to educate ourselves on how to take care of ourselves, but not everyone can do that. I’m telling you it’s a complicated roller coaster ride we diabetics lead sometimes.
My experiment with going back onto MDI (multiple dosage injecting) has had its ups and downs the past few months if you've been reading my dribbles here. I’m enjoying the freedom of not being hooked up to a machine, but at the same time, I miss the ease of how I can remedy a situation with a few touches of buttons on my pump and I’m all set. With MDI, I’m personally finding it a big challenge, to maintain those even BG’s that I can get with my pump basal settings. I had to give up on the Levemir part of my “experiment” due to reaction to the insulin. I am now having issues with low blood sugars in the morning. Trying to figure out what I’m doing wrong – e.g. am I giving my 2 shots of Lantus at the wrong time, am I ??? This is making me seek help from my endocrinologist for the past few days as I deal with waking up to BG’s in the 2-3 mmol/l – 36 – 54 mmol/l.
This morning I spent some time on the phone with various government services here in my province of Quebec. First I tried my local health service centre (CLSC), and they had never heard of a CDE (Certified Diabetic Educator). All they could offer me was a nutritionalist – but when I spoke to her – she didn’t even understand what a CDE was. She then put me thru’ to Info Sante after we had both done some searches on the Internet together where she said they should be able to help me. In the end, the Info Sante lady admitted that CDE’s are really a rarity in my province of Quebec (she had never heard of them – but again – perhaps due to my not knowing the French equivalent it didn’t help). She said my best option was to drive to Cornwall, Ontario – which is a few hours west of my home – and seek help there.
Just a few minutes ago, I was finally able to reach my endocrinologist’s secretary – and as usual – she’s finding it strange that because I work as a diabetic mentor – I don’t know what to do. When it comes to pumping, I’m a whiz semi-kid, but MDI, despite doing it for 40 years; I didn’t really understand how insulin worked, etc. before going onto the pump. She then told me that my endocrinologist has 10,000+ patients – these are open file patients – meaning – he is BUSY - so basically - no time to see me. These patients are not just diabetics, but other patients with endocrine disorders. He is overwhelmed. The fact that she runs the office on her own is another story (I keep on telling them to hire me – but it’s my darn lack of fluent French again). She also told me, that going to Ontario won’t help, that they have patients coming from that province since there are just not enough endocrinologists to serve them! Again, CDE’s, why don’t we have them here in this province is what is going thru’ my head which would take the pressure off the endocrinologist?
She did say that big changes were happening in the Fall time here in the area I live in for a clinic that will be set up just for diabetics (she was vague about what it all entailed). All I know is, that as a new diabetic, in my situation, I would be very scared, not being able to have some sort of help when I need it. To be told to go to ER is not something I feel we should do if we are having issues with our insulin regime. Are Quebec and the rest of Canada ready for the amount of diabetics that are being diagnosed and needing help? I hate to say this, but I don’t think so.
Back to research on Lantus again (hopefully Tudiabetes is working again) until I try my endocrinologists office again tomorrow (this is all his assistant could offer me). Diabetes right now seems to be taking up much of my time lately, as I try to find that magic combination to having level BG’s. Yes, Dianna, my pump, aka Salvador Dali keeps on looking better and better to me these past few days, but I must resist the pull of his twirly moustache, and hang in until my next A1C in July. I can do it; I can do it … with a few gripes here and there from the peanut gallery.